During Myositis Awareness Month, May 2018, we placed an even larger focus on patient education by hosting some of the myositis experts to lead live, online video education sessions.
These sessions covered polymyositis, necrotizing autoimmune myopathy (immune-mediated necrotizing myopathy), inclusion body myositis, and dermatomyositis.
This session led by Dr. Lisa Christopher-Stine of Johns Hopkins Myositis Center discusses the rarity of true polymyositis and also covers the diagnostic and clinical trial criteria, information about Necrotizing Autoimmune Myopathy, and more. A great comprehensive overview of the inflammatory myopathies.
Kevin Dooley, MD, a retired ophthalmologist and patient living with Inclusion body myositis, led this session about an antibody found in some IBM patients. With his background in medicine, he is a well-informed patient and led a session about the NT5C1A antibody and its role in diagnosing inclusion body myositis.
Dr. Conrad “Chris” Weihl is a physician scientist at Washington University School of Medicine in Saint Louis. He has both a clinical and research interest in hereditary and sporadic forms of inclusion body myopathy/myositis. Dr. Weihl led an in-depth session about inclusion body myositis titled, “New Insights on sIBM pathogenesis.”
We were happy to have Dr. Victoria Werth, internist and dermatologist, join us once again for a session titled, “New Developments on the Role of Itch in Dermatomyositis.” This session was based on new research published in the British Journal of Dermatology located here. We thank Corbus Pharmaceuticals for partnering with us on this session.
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Dr. Christopher-Stine is an Associate Professor of Medicine and Neurology and is the Director of the Johns Hopkins Myositis Center, a multidisciplinary clinic formally established in 2007 on the Johns Hopkins Bayview campus and one of the largest, most comprehensive centers of its kind worldwide. Over the past 14 years, she has been involved in clinical research related to idiopathic inflammatory myopathies (“myositis”) and has authored or co-authored over 40 publications.
