Myositis Awareness Month 2018

Theme: Myositis In Focus

Myositis Awareness 2018 Educational Videos

During Myositis Awareness Month, May 2018, we placed an even larger focus on patient education by hosting some of the myositis experts to lead live, online video education sessions.

These sessions covered polymyositis, necrotizing autoimmune myopathy (immune-mediated necrotizing myopathy), inclusion body myositis, and dermatomyositis.

Polymyositis: The evolution of this diagnosis in light of recent research by Dr. Lisa Christopher-Stine

This session led by Dr. Lisa Christopher-Stine of Johns Hopkins Myositis Center discusses the rarity of true polymyositis and also covers the diagnostic and clinical trial criteria, information about Necrotizing Autoimmune Myopathy, and more. A great comprehensive overview of the inflammatory myopathies.

The NT5C1A Antibody Test and its Role in the Diagnosis of Inclusion Body Myositis by Kevin Dooley

Kevin Dooley, MD, a retired ophthalmologist and patient living with Inclusion body myositis, led this session about an antibody found in some IBM patients. With his background in medicine, he is a well-informed patient and led a session about the NT5C1A antibody and its role in diagnosing inclusion body myositis.

New Insights on sporadic Inclusion body myositis (sIBM) pathogenesis by Dr. Conrad Weihl

Dr. Conrad “Chris” Weihl is a physician scientist at Washington University School of Medicine in Saint Louis. He has both a clinical and research interest in hereditary and sporadic forms of inclusion body myopathy/myositis. Dr. Weihl led an in-depth session about inclusion body myositis titled, “New Insights on sIBM pathogenesis.”

New Developments on the Role of Itch in Dermatomyositis by Dr. Victoria Werth

We were happy to have Dr. Victoria Werth, internist and dermatologist, join us once again for a session titled, “New Developments on the Role of Itch in Dermatomyositis.” This session was based on new research published in the British Journal of Dermatology located here. We thank Corbus Pharmaceuticals for partnering with us on this session.


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