For Myositis Awareness Month, May 2019, we went back to our roots with a theme and focus on #MyositisLIFE...
Second Annual “A Day of Remembrance” a video event to honor and remember those we have lost with myositis....
In observance of Myositis Awareness Month during the month of May, MSU has launched a new patient and caregiver...
May is Myositis Awareness Month and we want to introduce our brand new website where your experiences get the...
Alyssa Smith wrote and sings a new song, "Save Me" and it will premiere on Feb. 28th, Rare Disease...
During Myositis Awareness Month, May 2018, we placed a large focus on patient education by hosting some of the...
Corbus Pharmaceuticals will host Jerry Williams, the Founder and President of MSU, Heather Spadaccini, Jerry’s friend and part-time caregiver,...
MSU, in participation with Corbus Pharmaceuticals, Idera Pharmaceuticals, and Diplomat Specialty Infusion Group, as a part of Myositis Awareness...
PR: Myositis Support and Understanding Association, an all-volunteer, patient-centered 501(c)(3) nonprofit organization, commemorates National Myositis Awareness month with the...
Founder and President of MSU, Jerry Williams, shares details about MSU's plans for Myositis Awareness month, May 2018. Myositis...
What I find myself thinking about now, for the first time, in any detail, is who I was at...
I'm about to share a bit about myself that may be scary or shocking. I am certainly exposing some...
May is Myositis Awareness Month. Myositis Support and Understanding commemorates the month with patient-centered events. Our theme, "With Myositis,...
Myositis Awareness Month 2016: A success story: YOU and MSU together reached over 187,000 people during Myositis Awareness Month...
Adventures with Polymyositis: My experiences and what I’ve learned
, , #MyositisLIFE, MyositisLIFE Story
In March 2012, after several days of low-grade temperatures and muscle aches, I noticed heaviness in my legs, like...
Lekiha shares her poem, "Picture This, Myositis Will Not Win" for Myositis Awareness Month and MSU's #MyositisLIFE project.
Just a little collage to raise awareness of #polymyositis
Dermatomyositis does not have to stop you from pursuing your dreams. My journey had many challenges but I can...
Yvette shares her #MyositisLIFE, “Imagine That!,” a glimpse into being perfectly healthy and then becoming disabled in the blink...
My journey started in 2013. I was in the best physical shape in a long time. I started each...
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Upcoming Events
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Register to join Orthotics and Myositis video session
February 25 @ 6:00 pm - 7:00 pm EST -
sIBM Patient Video Support session, February 2020, 5 PM ET
February 28 @ 5:00 pm - 6:30 pm EST -
Rare Disease Day $500 Gift Card Giveaway sponsored by Plasma Services Group
February 29 @ 3:00 pm - 4:00 pm EST -
Register to join “An Introduction to the PRESIDIO Clinical Trial of KZR-616 for the Treatment of Polymyositis and Dermatomyositis”
February 29 @ 5:00 pm - 6:00 pm EST
