Alyssa Smith wrote and sings a new song, "Save Me" and it will premiere on Feb. 28th, Rare Disease...
During Myositis Awareness Month, May 2018, we placed a large focus on patient education by hosting some of the...
Register today for a live, online video education session May 30th at 2PM Eastern, New Developments on the Role...
Myositis Patient Video Support Session, Thursday, May 24th at 7 PM EDT Myositis Patients, mark your calendar and join...
Register today to join us May 23rd at 12PM Eastern for "New insights on sIBM pathogenesis" by Dr. C....
Join us live on our YouTube channel Sunday, May 20, 2018, starting at 2 PM EDT for “A Day...
Corbus Pharmaceuticals will host Jerry Williams, the Founder and President of MSU, Heather Spadaccini, Jerry’s friend and part-time caregiver,...
Register today to join us for a live, online video education session May 10th at 6PM Eastern, Rituximab for...
Register today to attend this free online video education session! Patient-led online video education session with Kevin Dooley, MD. The...
MSU, in participation with Corbus Pharmaceuticals, Idera Pharmaceuticals, and Diplomat Specialty Infusion Group, as a part of Myositis Awareness...
PR: Myositis Support and Understanding Association, an all-volunteer, patient-centered 501(c)(3) nonprofit organization, commemorates National Myositis Awareness month with the...
Founder and President of MSU, Jerry Williams, shares details about MSU's plans for Myositis Awareness month, May 2018. Myositis...
What I find myself thinking about now, for the first time, in any detail, is who I was at...
I'm about to share a bit about myself that may be scary or shocking. I am certainly exposing some...
May is Myositis Awareness Month. Myositis Support and Understanding commemorates the month with patient-centered events. Our theme, "With Myositis,...
Myositis Awareness Month 2016: A success story: YOU and MSU together reached over 187,000 people during Myositis Awareness Month...
Adventures with Polymyositis: My experiences and what I’ve learned
, , #MyositisLIFE, MyositisLIFE Story
In March 2012, after several days of low-grade temperatures and muscle aches, I noticed heaviness in my legs, like...
Lekiha shares her poem, "Picture This, Myositis Will Not Win" for Myositis Awareness Month and MSU's #MyositisLIFE project.
Just a little collage to raise awareness of #polymyositis
Dermatomyositis does not have to stop you from pursuing your dreams. My journey had many challenges but I can...
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Upcoming Events
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Myositis Caregiver Video Support Session, March
March 26 @ 8:00 pm - 9:30 pm EDT
