No registration required and this is open to the public. Invite your friends and family members to join as...
Join us for the 4th Annual Myositis Empower Walk in memory of Robert Landman. Join us in person at...
Co-authors of “Pain profile and opioid medication use in patients with idiopathic inflammatory myopathies”, published in Rheumatology discuss the...
The Power of Our Voice: FDA Listening Session for Adult DM Webinar
, , Dermatomyositis, Featured, News, Video
Watch the recording of our fireside chat, The Power of Our Voice: FDA Listening Session for Adult Dermatomyositis, where...
View the summary of our first-ever FDA Listening Session on Adult Dermatomyositis. This was an opportunity to facilitate the...
Join for a retrospective look at how a community call to action led to a seminal study on pain...
Join MSU for a webinar with CSI Pharmacy, Immune Globulin Therapy: All your questions answered. This is your opportunity...
The power of our voice can impact the direction of research and clinical trials. Join us for a virtual...
Join us for a free interactive workshop with Lori Wong, a person living with inclusion body myositis and retired...
Whether you missed it or want to watch it again, because it was that good, join your Myositis family...
To kick-off Spirit Week, join us LIVE on YouTube for an intimate discussion honoring the life of Stella Clapp...
Join us for the 3rd Annual Myositis Empower Walk either in person at Discovery Park in Henderson, NV, or...
Myositis Do-It-Yourself Accessibility Adaptations with Larry M.
, , Featured, Myositis Life Hacks, Video
Larry M. is living with inclusion body myositis (IBM) and he joined us to share adaptations he has made...
David Overby, a Physical Therapist with his own practice, joins us to talk about Hands On Physical Therapy for...
Watch the recording. Mamatha Pasnoor, MD, joined us to discuss inflammation of muscles with COVID infection, vaccination with immunosuppressive...
Episode 1: Communicating with your doctor as a myositis patient
, , Featured, Managing Your Care Series, Video
Watch the recording of Episode 1 of our new webinar series, Managing Your Care Starts with You, together with...
This is RARE. is hosting Jerry Williams, founder and president of MSU on Clubhouse for "Living with Myositis, An...
Mamatha Pasnoor, MD, is joining us to discuss Myositis and COVID including inflammation of muscles with COVID infection, vaccination...
Myositis group member, Larry shows us how he “Inspector Gadgets” his way through myositis. If you are interested in...
Doctor Salman Bhai MD joins the board of Myositis Support and Understanding as Medical Advisor
, , Featured, News
We are excited to announce that doctor Salman Bhai MD will be joining the MSU board as Medical Advisor....
