Myositis Caregivers take a break

Caregiver, take a break

As a caregiver for someone with myositis, you have one of the hardest, most stressful jobs imaginable. Caring for someone with muscle weakness, chronic pain, fatigue and other relentless symptoms is taxing, both physically and emotionally. Some of you may even care for someone who is now unable to do anything for themselves due to complete muscle function loss.

In order to help others, you must take care of yourself. Schedule time out each day to do something for yourself that you enjoy. Built up stress and feelings of guilt for wanting a break are normal emotions. Try some of the following activities to give yourself time away: keep a journal, take a nap, spend some time with a friend, meditate, exercise, take a walk or simply read a book. It is not selfish to need or want a break. After all, you are only human and pent-up stress can harm your body, mind and spirit.

Caregiving is a selfless act and one that myositis patients appreciate more than could ever be expressed. Caregivers are the heroes in this story!

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Myositis Support and Understanding Association (MSU) is a 501(c)(3) nonprofit organization with a mission to improve the day-to-day lives of Myositis patients. MSU is a patient-centered organization, founded by Myositis patients, for Myositis patients, and believes education, support, advocacy, and assistance are keys helping patients and caregivers. As a nonprofit, we rely on donations for funding and volunteers to help manage a fast growing organization.

View more information: Jerry Williams

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Campaign for Myositis Awareness Month, May 2017

Purchasing a shirt from this booster will help us, Myositis Support and Understanding, with our many patient support programs, education, financial assistance for patients and upcoming programs.

This year, 2017, Myositis Support and Understanding’s awareness month theme is “Sometimes Zebras have spots!” We want to raise awareness about how the experiences, symptoms, and complications of this rare disease are different, even among the patients with the same disease. Doctors are now trained, when you hear hoof beats, look for zebras (rarities), instead of horses (common ailments); when in the past, they only looked for the most common ailments.


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Hi, this may be interesting to you: Myositis Caregivers take a break! The link is included below: --- Myositis Support and Understanding is a 501(c)3 nonprofit organization.