A 2015 Holiday Message from the President of MSU

Holiday message from MSU

For a nonprofit organization that is only a few months old, Myositis Support and Understanding has had an amazing year! We have made wonderful friendships and have built upon our membership, our Board of Directors, our Group Administrators, and our Volunteers. We are blessed to have a team of compassionate, knowledgeable, and ready-to-work individuals who are passionate about our Mission and Vision. Our team is always willing to go the extra mile in helping educate and support patients, family members, and friends. And, they are willing to embrace change as we move forward with the programs and services on which we will focus in 2016.

As an organization founded by Myositis patients for Myositis patients, our entire team knows what life is like living with this rare disease. As sad as that is, it does provide us with a unique view into what is needed in the Myositis community.

What is coming in 2016?

The year 2016 is going to be huge! We have been actively creating our program guidelines so that when the funds arrive that we need, we can begin to implement them. There are three immediate programs and services we are ready to put into place

What can you do before the end of the year?

MSU is a 501(c)(3) non-profit organization. Please consider helping support us in the final days of 2015 with a generous donation. Truly, any amount makes a difference, whether it’s $5 or $1,000.

We are determined to make a difference in 2016 but we need your help and the help of your friends to accomplish more.

We wish you the Happiest of Holidays and a bright, promising New Year!

And, if you can, reach out to those living with Myositis that do not have anyone else right now. The holidays can bring about feelings of loneliness and even isolation. Call them, message or email them, or even Skype with them letting them know you are there and care. We are and always have been a family.

With a sincerely grateful heart,

Jerry Williams
Founder and President
Myositis Support and Understanding Association



Profile photo of Jerry Williams


Jerry Williams, the Founder and President of MSU, was diagnosed with Polymyositis in 2003 at the age of 27. Since his diagnosis, Jerry has made it his mission to help others living with the rare disease, Myositis. To this effort, Jerry is involved in many different aspects such as education, writing, helping support and answer questions from patients and caregivers, social networking and website development, and much more.

View more information: Jerry Williams

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Get your Zebra Shirts & Hoodies Today!

Campaign for Myositis Awareness Month, May 2017

Purchasing a shirt from this booster will help us, Myositis Support and Understanding, with our many patient support programs, education, financial assistance for patients and upcoming programs.

This year, 2017, Myositis Support and Understanding’s awareness month theme is “Sometimes Zebras have spots!” We want to raise awareness about how the experiences, symptoms, and complications of this rare disease are different, even among the patients with the same disease. Doctors are now trained, when you hear hoof beats, look for zebras (rarities), instead of horses (common ailments); when in the past, they only looked for the most common ailments.


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Hi, this may be interesting to you: A 2015 Holiday Message from the President of MSU! The link is included below: https://understandingmyositis.org/2015-holiday-message/ --- Myositis Support and Understanding is a 501(c)3 nonprofit organization.