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Myositis News, Research, and MSU Updates

Myositis Support and Understanding (MSU) is excited to partner on The Arthritis & Rheumatic Disease COVID-19 Project and we invite you to participate in a survey over time to help researchers and clinicians better understand how patients with myositis and other autoimmune conditions feel about COVID-19/the novel coronavirus.

This survey is the first one in a series of follow-up surveys that we will send to you every two weeks for the next 2 months and then again at the 6-month and 12-month mark. We hope you will be able to fill out the repeat surveys so we can continue to track respiratory illnesses across the United States and Canada and keep everyone up to date as things change. Each survey should take you no more than about 10 minutes to complete.

This survey is for anyone in the U.S. and Canada who has myositis or other autoimmune disease and is 19 years or older (or 21 years of age in Puerto Rico). Your information will be private. You will not be personally identified in any publications or information made public about this study. Participation is completely voluntary. If you agree to participate now, you can always change your mind or stop later.

We are committed to providing you updates over time about the rapidly changing situation around this topic as a way of supporting the community of people living with or affected by myositis and other autoimmune conditions.

Survey is closed as of 7/31/2020. Thank you to all who participated.

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Myositis Support and Understanding Association (MSU) is a patient-centered, all-volunteer 501(c)(3) nonprofit organization Empowering the Myositis Community. Founded by Myositis patients, for Myositis patients, MSU provides education, support, advocacy, access to research and clinical trial matching, and need-based financial assistance.

View more information: Myositis Support

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© 2020 Myositis Support and Understanding Association (MSU). All rights reserved. | View our Privacy Policy, Terms, and Non-Discrimination policy. MSU is a charitable organization with 501(c)(3) tax-exempt status. Federal ID #47-4570748.

The best way to prevent catching or spreading coronavirus is thorough hand washing, social distancing, and social isolation. Should you begin experiencing symptoms of coronavirus, which include fever, cough, and shortness of breath, please contact your doctor immediately. View COVID-19 resources and updates, and stay tuned to your state, local, and federal health agencies, along with the CDC.

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