The primary focus of Myositis Support and Understanding is muscle diseases which are referred to as “Idiopathic Inflammatory Myopathies” or “Acquired Myopathies,” meaning muscle diseases which are typically not inherited and are caused by the immune system attacking muscles, connective tissue, blood vessels, and/or the skin.
, , Dermatomyositis, Featured, News
MSU and TMA are leading the first-ever Adult Dermatomyositis Externally-Led Patient-Focused Drug Development (EL-PFDD) meeting on June 7, 2024....
Priovant Therapeutics joins MSU to discuss The Valor Study for Dermatomyositis, a phase 3 clinical trial for Adult Dermatomyositis....
, , Dermatomyositis, Featured, Myositis Treatments
The study provided efficacy data for Octagam 10%, which was approved for dermatomyositis by the US Food and Drug...
, , Dermatomyositis, Featured, Video
We hosted Priovant Therapeutics to discuss The Valor Study, a phase 3 clinical trial for adult dermatomyositis. Learn all...
Dermatomyositis and Sun Protection, Dr. Graham makes it clear the sun can cause flares. She talks about sunscreens and...
Dr. Graham educates about the skin manifestations of myositis, sharing the various DM rashes, cosmetic cover-ups, information and tips...
, , Dermatomyositis, Featured, News, Video
Watch the recording of our fireside chat, The Power of Our Voice: FDA Listening Session for Adult Dermatomyositis, where...
View the summary of our first-ever FDA Listening Session on Adult Dermatomyositis. This was an opportunity to facilitate the...
Watch the recording with Alexion Pharmaceuticals to learn about the Flex Study to evaluate the safety and efficacy of...
Seeking ten (10) people living with Dermatomyositis who would be willing to share their personal experience in a market...
, , Dermatomyositis, Featured, Research
Myositis Support & Understanding and AllStripes are partnering to create a database that will enable new Dermatomyositis research projects!...
IndeeLift, in partnership with Myositis Support and Understanding (MSU) is announcing a new program that combines the opportunity to...
, , Dermatomyositis, Featured, Research
Corbus releases topline results for the phase 3 study of lenabasum in dermatomyositis. While it didn't meet the primary...
Watch "Understanding Dysphagia" with Suzanne Belmonte, who is a myositis patient, and speech-language pathologist. Learn more about dysphagia from...
, , Featured, Inclusion Body Myositis (IBM), News
Learn more about the announcement from Orphazyme, communicating the topline results from the Phase 2/3 trial of arimoclomol for...
, , Dermatomyositis, Featured, Necrotizing Autoimmune Myopathy, Polymyositis, Video
Clinical trials are a key research tool for advancing medical knowledge and patient care. Join Kezar Life Sciences as...
The COVID vaccine is here, but what does that mean for us with myositis? MSU provides answers to some...
AllStripes provides an update on the inclusion body myositis (IBM) research program and the video includes a step-by-step walkthrough...
Third Annual “A Day of Remembrance” a video event to honor and remember those we have lost with myositis....
Educational and engaging discussion w/ Dr. Andrew Mammen around immune-mediated necrotizing myopathy (IMNM) and the phase 2 clinical trial...
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