Sarah shares her Appreciate Every Day video for Myositis Awareness Month and MSU’s #MyositisLIFE project.
Head dresses craft for family and the Ren Faire NY.
Tags: myositis awareness myositis story
Author: Myositis Support
Myositis Support and Understanding Association (MSU) is a patient-centered, all-volunteer 501(c)(3) nonprofit organization Empowering the Myositis Community. Founded by Myositis patients, for Myositis patients, MSU provides education, support, advocacy, access to research and clinical trial matching, and need-based financial assistance.
View more information: Myositis Support
In March 2012, after several days of low-grade temperatures and muscle aches, I noticed heaviness in my legs, like...
MSU Founder and President, Jerry Williams, shares his #MyositisLIFE. He shares his commitment to helping other Myositis patients...
As Jerry’s partner of 13 years, and spouse of 3 years, I think I have witnessed just about everything...
Rare Disease Day is February 28th.Learn more about what we are doing!
As an organization in the rare community, we recognize that by collaborating with others we can do more than acting alone. We have committed to THRIVE to empower others in the rare community. Join us at thriveforrare.org
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