Sarah shares her Appreciate Every Day video for Myositis Awareness Month and MSU’s #MyositisLIFE project.
Head dresses craft for family and the Ren Faire NY.
Tags: myositis awareness myositis story
Author: Myositis Support
Myositis Support and Understanding Association (MSU) is a 501(c)(3) nonprofit organization with a mission to improve the day-to-day lives of Myositis patients. MSU is a patient-centered organization, founded by Myositis patients, for Myositis patients, and believes education, support, advocacy, and assistance are key to helping patients and caregivers. As a nonprofit, we rely on donations for funding and volunteers to help manage our fast growing organization.
View more information: Myositis Support
Sage Filmore, 10 years old, interviews her mom, Emily Filmore, about MSU and what it is like to live...
IBM patients, mark your calendar and join us for this free video session with Mary Jane on Oct. 27th, 3PM Eastern Time. A little before the start time, visit this page and click on the join button. Open Discussion for IBM patients.
Join this free online video chat session. Fiona, living with Dermatomyositis for three years and ILD for two years, has realized the importance of being proactive about her lung issues. Some of the things she does are based on research, others are based on her personal experience. She is not a doctor but is delighted to share how she deals with it on an everyday basis.
Submit your personal Myositis story or video today! We learn through the experiences of others.
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