This was more like "A Month in the Life" since I filmed almost every day this month for Myositis...
This is a collection of user submitted content in the form of videos designed to promote awareness and education about living with the rare disease, Myositis and its subtypes of Polymyositis, Dermatomyositis, Inclusion Body Myositis, and the Juvenile forms of Dermatomyositis and Polymyositis.
As Jerry’s partner of 13 years, and spouse of 3 years, I think I have witnessed just about everything...
MSU Founder and President, Jerry Williams, shares his #MyositisLIFE. He shares his commitment to helping other Myositis patients...
Sage Filmore, 10 years old, interviews her mom, Emily Filmore, about MSU and what it is like to live...
- Join us for Rare Disease Day
- Browse Myositis Videos
- Explore Myositis
- Get Support
- Myositis Clinical Trials
- Myositis News
- Myositis Programs
- Upcoming Events
- Donate today!
February 25 @ 6:00 pm - 7:00 pm EST
February 28 @ 5:00 pm - 6:30 pm EST
February 29 @ 3:00 pm - 4:00 pm EST
Register to join “An Introduction to the PRESIDIO Clinical Trial of KZR-616 for the Treatment of Polymyositis and Dermatomyositis”February 29 @ 5:00 pm - 6:00 pm EST