View the summary of our first-ever FDA Listening Session on Adult Dermatomyositis. This was an opportunity to facilitate the...
Tag Archive for: myositis story
Watch and read as patients, caregivers, family members, friends, and others show and write about their lives living with the rare disease, Myositis.
Join us for the 3rd Annual Myositis Empower Walk either in person at Discovery Park in Henderson, NV, or...
This is RARE. is hosting Jerry Williams, founder and president of MSU on Clubhouse for "Living with Myositis, An...
A wife, sister, soldier, student, and a daughter. Life was great. 22 years old and nothing seemed impossible. The...
A short story about Jerry Williams, president of MSU, and getting involved
Myositis Support, , News, PolymyositisIt has been over 13 years since Jerry Williams, president of MSU, was diagnosed with Polymyositis, sometimes simply referred...
"My daughter is my first priority, always. There are days when brushing my hair is hard, showering is a...
Adventures with Polymyositis: My experiences and what I’ve learned
Myositis Support, , #MyositisLIFE, MyositisLIFE StoryIn March 2012, after several days of low-grade temperatures and muscle aches, I noticed heaviness in my legs, like...
Ellen Armour and I, our life with Polymyositis
Myositis Support, , #MyositisLIFE, MyositisLIFE StoryStan shares his thoughts on his wife, Ellen, and her on-going battle with polymyositis.
Lekiha shares her poem, "Picture This, Myositis Will Not Win" for Myositis Awareness Month and MSU's #MyositisLIFE project.
Dermatomyositis does not have to stop you from pursuing your dreams. My journey had many challenges but I can...
My journey started in 2013. I was in the best physical shape in a long time. I started each...
Sarah shares her Appreciate Every Day video for Myositis Awareness Month and MSU’s #MyositisLIFE project.
Dear Dermatomyositis, I am writing you because I found out in January 2015 you were the culprit behind my...
I have heard so many stories of how those diagnosed with a chronic illness, like Myositis, have lost their...
I have Inclusion Body Myositis (IBM); a rare and degenerative muscle wasting disease. It is an autoimmune disease with...
Jerry Williams shares his #MyositisLIFE living with Polymyositis and overlap syndromes
Myositis Support, , #MyositisLIFE, MyositisLIFE Story, MyositisLIFE VideoMSU Founder and President, Jerry Williams, shares his #MyositisLIFE. He shares his commitment to helping other Myositis patients...
I was diagnosed with Polymyositis in September of 2012. Before getting sick, I was always so busy working, running...
Sage Interviews Emily about Life with Myositis and why #MyositisAwareness is important
Myositis Support, , #MyositisLIFE, MyositisLIFE VideoSage Filmore, 10 years old, interviews her mom, Emily Filmore, about MSU and what it is like to live...
I am the their care giver you see me every where But what you don't see is just how I...
I have polymyositis , having been diagnosed 24 years ago. The diagnosis was confirmed after six months of testing. I...