View the summary of our first-ever FDA Listening Session on Adult Dermatomyositis. This was an opportunity to facilitate the...
Watch and read as patients, caregivers, family members, friends, and others show and write about their lives living with the rare disease, Myositis.
A wife, sister, soldier, student, and a daughter. Life was great. 22 years old and nothing seemed impossible. The...
It has been over 13 years since Jerry Williams, president of MSU, was diagnosed with Polymyositis, sometimes simply referred...
"My daughter is my first priority, always. There are days when brushing my hair is hard, showering is a...
Adventures with Polymyositis: My experiences and what I’ve learned
, , #MyositisLIFE, MyositisLIFE Story
In March 2012, after several days of low-grade temperatures and muscle aches, I noticed heaviness in my legs, like...
Stan shares his thoughts on his wife, Ellen, and her on-going battle with polymyositis.
Lekiha shares her poem, "Picture This, Myositis Will Not Win" for Myositis Awareness Month and MSU's #MyositisLIFE project.
Dermatomyositis does not have to stop you from pursuing your dreams. My journey had many challenges but I can...
My journey started in 2013. I was in the best physical shape in a long time. I started each...
Sarah shares her Appreciate Every Day video for Myositis Awareness Month and MSU’s #MyositisLIFE project.
Dear Dermatomyositis, I am writing you because I found out in January 2015 you were the culprit behind my...
I have heard so many stories of how those diagnosed with a chronic illness, like Myositis, have lost their...
I have Inclusion Body Myositis (IBM); a rare and degenerative muscle wasting disease. It is an autoimmune disease with...
Jerry Williams shares his #MyositisLIFE living with Polymyositis and overlap syndromes
, , #MyositisLIFE, MyositisLIFE Story, MyositisLIFE Video
MSU Founder and President, Jerry Williams, shares his #MyositisLIFE. He shares his commitment to helping other Myositis patients...
I was diagnosed with Polymyositis in September of 2012. Before getting sick, I was always so busy working, running...
Sage Interviews Emily about Life with Myositis and why #MyositisAwareness is important
, , #MyositisLIFE, MyositisLIFE Video
Sage Filmore, 10 years old, interviews her mom, Emily Filmore, about MSU and what it is like to live...
I am the their care giver you see me every where But what you don't see is just how I...
I have polymyositis , having been diagnosed 24 years ago. The diagnosis was confirmed after six months of testing. I...
I have been working on my cross stitch project for several months. Here is the first half.
I have Inclusion Body Myositis (IBM); a rare and degenerative muscle disease. It is an autoimmune disease with symptoms...
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