Archive for category: #MyositisLIFE
This is a collection of user submitted content designed to promote awareness and education about living with the rare disease, Myositis and its subtypes of Polymyositis, Dermatomyositis, Inclusion Body Myositis, and the Juvenile forms of Dermatomyositis and Polymyositis.
Watch for information to help guide your local physical and occupational therapy teams such as what should be included...
Occupational therapists Megan McGowan and Lauren Burgess, and physical therapists Fin Mears and Ruben Pagkatipunan Jr., discuss and demonstrate...
Watch "Surviving the Holidays with Myositis" a webinar on #MyositisLIFE. Learn tips to get through the holidays living with...
May is Myositis Awareness Month and we want to introduce our brand new website where your experiences get the...
Alyssa Smith wrote and sings a new song, "Save Me" and it will premiere on Feb. 28th, Rare Disease...
What I find myself thinking about now, for the first time, in any detail, is who I was at...
As you probably know, we have lost many of our MSU group members throughout the past couple of years,...
Adventures with Polymyositis: My experiences and what I’ve learned

In March 2012, after several days of low-grade temperatures and muscle aches, I noticed heaviness in my legs, like...
This was more like "A Month in the Life" since I filmed almost every day this month for Myositis...
Ellen Armour and I, our life with Polymyositis

Stan shares his thoughts on his wife, Ellen, and her on-going battle with polymyositis.
Lekiha shares her poem, "Picture This, Myositis Will Not Win" for Myositis Awareness Month and MSU's #MyositisLIFE project.
Just a little collage to raise awareness of #polymyositis
Dermatomyositis does not have to stop you from pursuing your dreams. My journey had many challenges but I can...
Yvette shares her #MyositisLIFE, “Imagine That!,” a glimpse into being perfectly healthy and then becoming disabled in the blink...
My journey started in 2013. I was in the best physical shape in a long time. I started each...
Sarah shares her Appreciate Every Day video for Myositis Awareness Month and MSU’s #MyositisLIFE project.
Dear Dermatomyositis, I am writing you because I found out in January 2015 you were the culprit behind my...
I have heard so many stories of how those diagnosed with a chronic illness, like Myositis, have lost their...
I have Inclusion Body Myositis (IBM); a rare and degenerative muscle wasting disease. It is an autoimmune disease with...