Sponsorship and Patron opportunities are available
MSU is instrumental in improving the lives of people living with myositis (idiopathic inflammatory myopathies), a group of rare, complicated autoimmune muscle, skin, and often multi-organ diseases, through education, support, awareness, advocacy, access to research, and need-based financial assistance.
We are a fast-growing patient-led 501(c)(3) nonprofit organization with the experience needed to support and advocate for myositis patients and caregivers. Myositis affects the whole person and every aspect of their life. Understanding this disease isn’t limited to symptoms, we push for the inclusion of the patient voice in research and clinical care, and we work to empower the community to acknowledge patients and caregivers as equals – a part of a team – in their healthcare management.
We provide more than support. We continually work hard as an all-volunteer organization providing patient-centered programs and services and building unique and meaningful partnerships in the rare disease community. Technology is a driving force in our continued growth and success; educating, supporting, and connecting patients, caregivers, and family members with one another, and with doctors, researchers, clinical trials, partners, and patient-first focused providers.
Sponsorships include both our comprehensive myositis website, Understandingmyositis.org, and our #MyositisLIFE program and website; giving a voice to patients and caregivers.
#MyositisLIFE is our newest program with a dedicated interactive community-based website, and it provides a solution to a missing piece in awareness and research; the patient voice.