Focusing on the realities of myositis would be incomplete without you sharing your photos, short videos, and personal stories.
We need to show the world what myositis looks like. Some may look healthy, some may be covered with itchy-to-painful skin rashes, some walk with a cane, walker or use a wheelchair or powerchair, some wear oxygen and others have feeding tubes and other medical devices. Myositis looks different for each person.
With your involvement, we can make a larger impact by asking others to look closer at myositis and focus on the plethora of difficulties patients and caregivers face during the diagnostic process, handling complicated treatments, and managing even the seemingly simplest tasks of day-to-day life.
You can submit your stories, short videos, images, and memes on our new patient and caregiver experience website, Myositislife.org.