#MyositisLIFE, Share your Story

Empowering the Myositis Community through shared experiences

Content submitted will be public, excluding private information as indicated in the form below. 

Focusing on the realities of myositis would be incomplete without you sharing your photos, short videos, and personal stories.

This year, we would like to show the world a variety of what myositis looks like. Some may look healthy, some may be covered with itchy-to-painful skin rashes, some walk with a cane, walker or use a wheelchair or powerchair, some wear oxygen and others have feeding tubes and other medical devices. Myositis looks different for each person.

With your involvement, we can make a larger impact by asking others to look closer at myositis and focus on the plethora of difficulties patients and caregivers face during the diagnostic process, handling complicated treatments, and managing even the seemingly simplest tasks of day-to-day life.

You can submit your content using the form below or email us at info@Understandingmyositis.org 

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