Myositis Support and Understanding (MSU) is once again a Top-Rated Award from GreatNonprofits! It is through you sharing your experiences about our organization that we get this great honor.
Read inspiring stories about how we are empowering myositis patients and caregivers and add your own!
At Myositis Support and Understanding (MSU), we believe in transparency. We have been a Platnum organization since 2017.
You can learn more about our organization, our goals, financials, and more by visiting us on Guidestar.
Myositis Support and Understanding (MSU) is working at the national level, through EveryLife Foundation’s Rare Disease Community Congress Working Groups, in addition to working on the COVID-19 ad hoc committee, the MSU Board is lending our input in three critical areas:
(1) public policy,
(2) access to approved therapies,
(3) improving the regulatory process and advancing regulatory science for rare disease therapies.
We support the STAT Act! Talk to your legislators today.
Myositis Support and Understanding (MSU) is a member of the Global Genes Advocacy Alliance and a Founding Member.
Myositis Support and Understanding (MSU) was one of the initial organization spotlight nonprofits. We are proud to be listed and associated with Accessibility.com. Be sure to check it out.