Register to attend - Surviving the Holidays with Myositis
Register and join MSU along with Megan and Lauren, occupational therapists with extensive experience working with the myositis community, for a conversation on tips and tricks to get through the holiday season, on Wednesday, November 13, 2019, at 7 PM Eastern time. Registration is required.
Upcoming Video Events
Registration is required for all events except for support sessions.
Surviving the Holidays with Myositis
November 13 @ 7:00 pm - 8:30 pm ESTMyositis Patient Video Support Session, November 16th, 2019
November 16 @ 2:00 pm - 3:30 pm ESTCaring for Caregivers Webinar
November 20 @ 7:00 pm - 8:00 pm ESTsIBM Patient Video Support Session, November 2019
November 29 @ 5:00 pm - 6:30 pm EST
Register to join us
Caring for Caregivers: A webinar from The Myositis Association (TMA) and Myositis Support and Understanding (MSU).
In celebration of National Family Caregivers Month, TMA and MSU invite you to join us for a conversation about the challenges of caring for someone with myositis and resources available to help.
Inclusion body myositis
Although we serve all patients and caregiers with myositis, inclusion body myositis is different from the other inflammatory myopathies.
sIBM patients, here are just some opportunies:
Myositis News and Updates
Ben Matys, Sr. Clinical Trial Manager, and Ramin Farzaneh-Far, Chief Medical Officer of Ra Pharma, joined MSU) on November 6, 2019, for a live webinar, “Introduction to Ra Pharma & the Potential of Zilucoplan for the Treatment of Immune-Mediated Necrotizing Myopathy (IMNM)” Watch the recorded version.
The Food and Drug Administration (FDA) regulates stem cell products in the U.S. and recently issued a warning about stem cell therapies that are illegal and even harmful.
November is National Family Caregivers Month!
It’s the month we focus even more on our myositis caregivers with support, encouragemnt, and resources to help.
We have put together tips and resources we believe will help you as a member of your loved one’s healthcare team.
Check out #MyositisLIFE
Learn more about our newest program with its own dedicated interactive community website, #MyositisLIFE. Designed just for myositis patient and caregivers to share their experiences with myositis, this program helps others to better understand our rare disease and will help to gain interest from the medical and research communities.
Popular Resources
Financial Assistance Program
We know firsthand myositis affects every aspect of a persons life.
We are here to help.
