WATCH PARTY of the 3rd Annual Myositis Empower Walk
Get Involved. Get Moving. Find your Family.
Join us on Zoom Sat. Oct. 23rd for a Watch Party! Invite your family members and friends.
Can you contribute? No matter how much you are able to give, whether it’s $5 or $500,000, it all makes a true difference at MSU, an all-volunteer, all-virtual nonprofit organization where your donation goes directly back to patients and care partners through our support and education programs and our financial assistance program for patients.
Living with myositis is hard enough. We are here to help with our Myositis Patient Financial Assitance Program. We cover certain emergency household expenses, medical bills, and mobility and assistive devices. Program is available to U.S. residents. See full details available in our help guide.
At MSU, we are patients and caregivers, too. We started with support, and with our support programs, you will find a family. Join us for myositis patient and caregiver groups, Zoom support, and rooms on Clubhouse. You are NOT alone in this journey.
Living with myositis is hard enough. We are here to help with our Myositis Patient Financial Assitance Program. We cover certain emergency household expenses, medical bills, and mobility and assistive devices. Program is available to U.S. residents. See full details available in our help guide.
We believe in the patient-centered research approach, working together with pharma, biotech, academia, and other unique research solutions to improve the lives of those living with myositis. Learn more about the research we are doing and how you can get involved.
Watch recordings of our expert-led myositis educational videos to learn more about the various types of myositis and other myositis-related topics and patient opportunities. New videos just added!
We have put together a list of trusted resources for COVID-19. Be sure to stay tuned to your local and state public health office for details in your area.
Myositis News and Updates
Myositis Support & Understanding and AllStripes are partnering to create a database that will enable new Dermatomyositis research projects! We’re looking for patients/families willing to contribute their de-identified medical records to make this effort as strong as possible.
Episode 2: Managing Your Care series, Brett Burton, PT, DPT, SCS, ATC, CSCS, Founder of Somavive and Proactive Performance Coach explains the technique of blood flow restriction, demonstrates how it can be used by myositis patients to improve/maintain muscle strength and answers your questions.
See how the IndeeLift can change your life. Don’t let the cost deter you. If insurance will not cover, and you can’t afford the IndeeLift, there are options to get the lift into your home to help you live your life and regain your independence! If you require financial assistance, CHOOSE OPTION 3 ON THE FORM.
Upcoming Myositis Events
#MyositisLIFE: DM, PM and ASyS Patient Video Support
October 20 @ 7:00 pm - 9:00 pm EDTMyositis Support Gets Moving on Clubhouse
October 21 @ 1:00 pm - 2:30 pm EDTWatch Party – 3rd Annual Myositis Empower Walk
October 23 @ 3:00 pm - 5:30 pm EDT#MyositisLIFE: Weekly Sunday Clubhouse Support
October 24 @ 7:30 pm - 9:30 pm EDTMyositis Support Gets Moving on Clubhouse
October 28 @ 1:00 pm - 2:30 pm EDT#MyositisLIFE: IBM Patient Video Support
October 29 @ 5:00 pm - 7:00 pm EDT#MyositisLIFE: Necrotizing Myopathy Patient Video Support
October 30 @ 3:00 pm - 5:00 pm EDT
Myositis Support & Understanding and AllStripes are partnering to create a database that will enable new Dermatomyositis research projects! We’re looking for patients/families willing to contribute their de-identified medical records to make this effort as strong as possible.
Are you living with myositis?
There are many empowering opportunities for myositis patients. Get involved, advocate and educate, and be a part of traditional and unique patient-focused medical research, and more!
Myositis patients, here are some opportunities:
Like and Follow Myositis Support and Understanding (MSU)
on our social networks to engage with the myositis community.
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