COVID-19 & Myositis: Patient Survey
MSU has partnered with The Global Healthy Living Foundation to promote a deeper understanding of the impact of COVID-19 on the myositis community. We invite all living with myositis in the U.S. and Canada to take part in this important research survey.
Living with myositis is hard enough. We are here to help with our Myositis Patient Financial Assitance Program. We cover certain emergency household expenses, medical bills, and mobility and assistive devices. Program is available to U.S. residents. See full details available in our help guide.
Plasma donations are down 25% and without an increase in plasma donors there could be a shortage of IG (IVIG, SCIG) used to treat myositis and many other diseases. Learn more, find a plasma donation center, and invite your family and friends to donate and join the #ItsMyTurn campaign.
Watch recordings of our expert-led myositis educational videos to learn more about the various types of myositis and other myositis-related topics and patient opportunities. New videos just added!
We have put together a list of trusted resources for COVID-19 including an update to our plans at MSU to pause business as usual and focus solely on supporting our fellow patients and caregivers in this frightening time.
Upcoming Myositis Video Events
Monthly Saturday Afternoon Myositis Patient Video Support
July 18 @ 3:00 pm - 4:30 pm EDT|Recurring Event (See all)An event every month that begins at 3:00 pm on day Third of the month, repeating until December 19, 2020
IMNM Patient Video Support session
July 25 @ 3:00 pm - 4:30 pm EDT|Recurring Event (See all)An event every month that begins at 3:00 pm on day Last of the month, repeating until December 26, 2020
IBM Patient Video Support session
July 31 @ 5:00 pm - 6:30 pm EDT|Recurring Event (See all)An event every month that begins at 5:00 pm on day Last of the month, repeating until December 25, 2020
One event on December 18, 2020 at 5:00 pm
Monthly Wednesday Evening Myositis Patient Video Support
August 5 @ 7:00 pm - 8:30 pm EDT|Recurring Event (See all)An event every month that begins at 7:00 pm on day First of the month, repeating until December 2, 2020
Managing Myositis Patient Care During the COVID-19 Public Health Crisis
Dr. Rohit Aggarwal answers patient-submitted questions about COVID-19 and myositis with topics including proper precautions to stay safe, information about immune-suppressing medications and IG, and much more.
Are you living with myositis?
There are many empowering opportunities for myositis patients right now. Get involved, advocate and educate, and be a part of traditional and unique patient-focused medical research!
Myositis News and Updates
Trusted resources and updates about the coronavirus (COVID-19) pandemic and myositis, including newly updated information and resources to help you stay safe. We will continue to provide updates as they are available.
Watch for information to help guide your local physical and occupational therapy teams such as what should be included in a PT/OT evaluation, goals to expect, and various exercises for myositis patients and how to modify them.
Until systemic oppression is addressed in policing, education, medicine, and in countless other places, we will never be able to achieve our vision to “create a world where patients, caregivers, and providers have better knowledge, support, and understanding of myositis.”
Caregivers make it all possible!
Our myositis caregivers give and give, and they need support, encouragement, and resources to help.
We have put together some tips, articles, videos, and resources we believe will help you as a member of your loved one’s healthcare team.
