Register to attend - Surviving the Holidays with Myositis

Register and join MSU along with Megan and Lauren, occupational therapists with extensive experience working with the myositis community, for a conversation on tips and tricks to get through the holiday season, on Wednesday, November 13, 2019, at 7 PM Eastern time. Registration is required.

Upcoming Video Events

Registration is required for all events except for support sessions.

Caring for Caregivers webinar by TMA and MSU

Register to join us

Caring for Caregivers: A webinar from The Myositis Association (TMA) and Myositis Support and Understanding (MSU).

In celebration of National Family Caregivers Month, TMA and MSU invite you to join us for a conversation about the challenges of caring for someone with myositis and resources available to help.

Inclusion body myositis

Patient Opportunies

Although we serve all patients and caregiers with myositis, inclusion body myositis is different from the other inflammatory myopathies.

What is IBM?

Myositis News and Updates

Introduction to Ra Pharma & the Potential of Zilucoplan for the Treatment of IMNM Webinar

Ben Matys, Sr. Clinical Trial Manager, and Ramin Farzaneh-Far, Chief Medical Officer of Ra Pharma, joined MSU) on November 6, 2019, for a live webinar, “Introduction to Ra Pharma & the Potential of Zilucoplan for the Treatment of Immune-Mediated Necrotizing Myopathy (IMNM)” Watch the recorded version.

FDA Warning About Stem Cell Therapies

The Food and Drug Administration (FDA) regulates stem cell products in the U.S. and recently issued a warning about stem cell therapies that are illegal and even harmful.

November is National Family Caregivers Month!

It’s the month we focus even more on our myositis caregivers with support, encouragemnt, and resources to help.

We have put together tips and resources we believe will help you as a member of your loved one’s healthcare team. 

#MyositisLIFE website, patient and caregiver experiences

Check out #MyositisLIFE

Learn more about our newest program with its own dedicated interactive community website, #MyositisLIFE. Designed just for myositis patient and caregivers to share their experiences with myositis, this program helps others to better understand our rare disease and will help to gain interest from the medical and research communities.

Share your experiencesRead latest articles

Financial Assistance Program

We know firsthand myositis affects every aspect of a persons life.
We are here to help.

2019 MSU Sponsors

We thank the generous sponsors of MSU and #MyositisLIFE. Learn more about our sponsors below.

Followon these networks

Like and Follow MSU on social networking to engage with the myositis community.

© 2019 Myositis Support and Understanding Association (MSU). All rights reserved. | View our Privacy Policy, Terms, and Non-Discrimination policy

MSU is a charitable organization with 501(c)(3) tax-exempt status. Federal ID #47-4570748.

Login with your credentials


Forgot your details?

Register for Membership

Send this to a friend