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RARE Talk with MSU: Creating through chronic illness and grief

August 16, 2021 @ 7:00 pm - 9:00 pm EDT

Rare Talk with MSU: on clubhouse! Creating THROUGH CHRONIC ILLNESS & GRIEF

RARE Talk with MSU: Creating through chronic illness and grief
with Lisa Sniderman

Only on Clubhouse

Hosted by RareABILITY

Monday, August 16, 2021, at 7 PM Eastern Time

On the Clubhouse mobile app, search for and follow the club RareABILITY
Then, see the schedule and join the room!

Creating through chronic illness and grief 

Join MSU and Lisa Sniderman (award-winning artist Aoede), creator of The Grieving Project who has struggled with a rare autoimmune progressive muscle disease, dermatomyositis, for 13 years while obsessively creating to heal, for an open conversation about creating, forgetting to grieve, and what it even means to grieve a rare illness.

Listen in or be part of the conversation all about creating while living with our chronic illnesses and losses. 

  • What is creating?
  • When, why, and how do we create?
  • What does creating mean to You?
  • Tell us about some of the art forms you’ve turned to!

This event is only on Clubhouse, an audio-only social and networking app for your phone. Join and listen in, and to be a part of the discussion if you choose!

The Grieving Project by LIsa Sniderman, Aoede, cover art

The Grieving Project

Lisa Sniderman, the creator of The Grieving Project, realized she forgot to grieve her rare illness and realized that through music, she could reach many others who may have also forgotten to grieve.

“The Grieving Project is a road map to our hearts, an invitation for you to grieve your loss, your change, your unexpected and unwanted transformation, and the inspiration and encouragement you need to awaken, express, rejuvenate, activate, connect, shine and truly thrive!” 50% of proceeds are generously donated by Lisa to MSU.

The Grieving Project Read I forgot to grieve

Upcoming support and education sessions

Event starts in . . .

2021/08/16 19:00:00



August 16, 2021
7:00 pm - 9:00 pm EDT
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Myositis Support and Understanding (MSU)
View Organizer Website


Suggested Audience
Open to the public

© 2024 Myositis Support and Understanding Association (MSU). All rights reserved. | View our Privacy Policy, Terms, and Non-Discrimination policy. MSU is a charitable organization with 501(c)(3) tax-exempt status. Federal ID #47-4570748.

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