Myositis Support and Understanding (MSU)
Weekly Sunday Clubhouse Support
ClubhouseJoin our House, Myositis Support on Clubhouse, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
Myositis Reads – A Book Club for Those with Myositis
ClubhouseJoin us on Clubhouse for Myositis Reads - A book club for those with myositis every 3rd Monday of the month. Care partners welcome.
Couch Critics – A Movie Club for the Myositis Community
MSU Zoom Video Session Video session using ZoomJoin us for a delightful escape into the world of film, hosted by MSU Virtual Moderators William Robinson and Mary Oltmans. Whether you're a patient or a care partner, this movie club is for you!
Myositis Support Gets Moving on Clubhouse
ClubhouseALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
Finding Our Balance: Navigating Myositis & Dysautonomia
MSU Zoom Video Session Video session using ZoomAre you living with Myositis and also dealing with Dysautonomia or suspect you might be? You're not alone! It's common for autoimmune conditions like Myositis to co-occur with Dysautonomia. Join our support group, offering a safe and nurturing space for individuals managing both conditions.
Immune-Mediated Necrotizing Myopathy Support Group
MSU Zoom Video Session Video session using ZoomJoin us for Immune-Mediated Necrotizing Myopathy patient virtual video support on the last Saturday of each month at 7 PM ET.
Weekly Sunday Clubhouse Support
ClubhouseJoin our House, Myositis Support on Clubhouse, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
Myositis Support Gets Moving on Clubhouse
ClubhouseALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
Women with Myositis Virtual Support Group
MSU Zoom Video Session Video session using ZoomWomen living with any type of Myositis, join the MSU crew for our new monthly Women with Myositis Video Support group! Join with camera on or off. First Monday's at 7 PM ET on Zoom.
Wednesday Evening Myositis Support Group
MSU Zoom Video Session Video session using ZoomAll Myositis patients, register to join us on the first Wednesday of each month at 7 PM ET for live video support.
Young Adults with Myositis – MSU YA Collective Power Hour
MSU Zoom Video Session Video session using ZoomJoin fellow young adults living with Myositis for a private, real-time group video support session. This is a safe, supportive space to connect with others who understand what it’s like to navigate young adulthood with a chronic illness.
Breathe Easy: Myositis Lung Support Bi-Monthly Virtual Support Group
MSU Zoom Video Session Video session using ZoomThis group aims to provide a compassionate and welcoming space where individuals can connect, share their experiences, and gain insights from others who understand the unique challenges of living with myositis and lung complications.
Couch Critics – A Movie Club for the Myositis Community
MSU Zoom Video Session Video session using ZoomWelcome to "Couch Critics," a brand-new movie club hosted by MSU Virtual Moderators William Robinson and Mary Oltmans, designed especially for our Myositis community—both patients and care partners.
International Myositis Support
MSU Zoom Video Session Video session using ZoomInternational Myositis Virtual Support Group for all Myositis patients and their care partners, held on Zoom. This is a fantastic opportunity to connect with others from around the world, share experiences, and offer mutual support in a safe and welcoming environment.
Myositis Cancer Support Group
MSU Zoom Video Session Video session using ZoomWe are excited to announce a special support group dedicated to Myositis patients who are currently battling cancer or are survivors.
Couch Critics – A Movie Club for the Myositis Community
MSU Zoom Video Session Video session using ZoomJoin us for a delightful escape into the world of film, hosted by MSU Virtual Moderators William Robinson and Mary Oltmans. Whether you're a patient or a care partner, this movie club is for you!
Inclusion Body Myositis Support Group
MSU Zoom Video Session Video session using ZoomJoin the MSU Inclusion Body Myositis patient virtual video support session the last Friday of each month at 5 PM Eastern.
Finding Our Balance: Navigating Myositis & Dysautonomia
MSU Zoom Video Session Video session using ZoomAre you living with Myositis and also dealing with Dysautonomia or suspect you might be? You're not alone! It's common for autoimmune conditions like Myositis to co-occur with Dysautonomia. Join our support group, offering a safe and nurturing space for individuals managing both conditions.
Immune-Mediated Necrotizing Myopathy Support Group
MSU Zoom Video Session Video session using ZoomJoin us for Immune-Mediated Necrotizing Myopathy patient virtual video support on the last Saturday of each month at 7 PM ET.
Women with Myositis Virtual Support Group
MSU Zoom Video Session Video session using ZoomWomen living with any type of Myositis, join the MSU crew for our new monthly Women with Myositis Video Support group! Join with camera on or off. First Monday's at 7 PM ET on Zoom.
