Risk vs. Benefit – Making the Decision to Join a Clinical Trial

From a patient perspective

Kambiz (Kam) Roghanchi, a volunteer with Myositis Support and Understanding (MSU) and a patient living with refractory dermatomyositis, takes us through his journey that led to his decision to participate in a clinical trial. He takes us through the pros and cons, and the many challenges and factors he faced in finding the right clinical trial for him. Kam also takes questions after his talk.

Great information was shared in this outstanding webinar that included Jessica Taylor and Manuel Lubinus!

MSU appreciates ALL who participate in clinical trials. Only with your help can others look forward to finding new medications!



Myositis Support and Understanding Association (MSU) is a patient-centered, all-volunteer 501(c)(3) nonprofit organization Empowering the Myositis Community. Founded by Myositis patients, for Myositis patients, MSU provides education, support, advocacy, access to research and clinical trial matching, and need-based financial assistance.

View more information: Myositis Support


Leave a reply

Your email address will not be published. Required fields are marked *


This site uses Akismet to reduce spam. Learn how your comment data is processed.

© 2024 Myositis Support and Understanding Association (MSU). All rights reserved. | View our Privacy Policy, Terms, and Non-Discrimination policy. MSU is a charitable organization with 501(c)(3) tax-exempt status. Federal ID #47-4570748.

Log in with your credentials


Forgot your details?

Register for Free Membership

Send this to a friend