Tag Archive for: advocacy
Stephen Moore, a Neuroscientist living with Dermatomyositis joined MSU's Patient-Centered Research Team. His passion lies in advancing research efforts...
Episode 1: Communicating with your doctor as a myositis patient
Watch the recording of Episode 1 of our new webinar series, Managing Your Care Starts with You, together with...
Inclusion means recognizing how important and special a role each person plays in this beautiful, diverse world we live...
Young adults living with rare diseases have many unmet needs and many life decisions that can be impacted by...
Meet two people with myositis who are living their lives with purpose and positivity. Holly Jones and Rhonda Rogers...
Myositis Support and Understanding (MSU) announces the formation of its Diversity, Equity, and Inclusion Committee
MSU’s Diversity, Equity, and Inclusion Committee's goal is to amplify more wide-ranging voices, while increasing MSU’s ability to serve...
Learn more about Rose's experience on Capitol Hill during Rare Disease Week 2017. Find helpful links to Advocacy organizations...
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Standards of Care for Home Infusion Webinar Hosted by: IV Solutions Rx April 29, 2025
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Managing Your Expectations with Movement & Exercise with Kourage Health March 3, 2025
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Catch the Replay: “Your Health, Your Voice: Building a Lifesaving Medical Binder” with the Three Myositis Musketeers! January 23, 2025














