Join for a retrospective look at how a community call to action led to a seminal study on pain...
The power of our voice can impact the direction of research and clinical trials. Join us for a virtual...
To kick-off Spirit Week, join us LIVE on YouTube for an intimate discussion honoring the life of Stella Clapp...
RARE. Talk with MSU: Self-Advocate or Hypochondriac, on Clubhouse, hosted by This is RARE. How does your doctor respond...
This is RARE. is hosting Jerry Williams, founder and president of MSU on Clubhouse for "Living with Myositis, An...
Episode 1: Communicating with your doctor as a myositis patient
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Watch the recording of Episode 1 of our new webinar series, Managing Your Care Starts with You, together with...
Inclusion means recognizing how important and special a role each person plays in this beautiful, diverse world we live...
Young adults living with rare diseases have many unmet needs and many life decisions that can be impacted by...
Meet two people with myositis who are living their lives with purpose and positivity. Holly Jones and Rhonda Rogers...
Myositis Support and Understanding (MSU) announces the formation of its Diversity, Equity, and Inclusion Committee
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MSU’s Diversity, Equity, and Inclusion Committee's goal is to amplify more wide-ranging voices, while increasing MSU’s ability to serve...
Learn more about Rose's experience on Capitol Hill during Rare Disease Week 2017. Find helpful links to Advocacy organizations...
