Learn more about how to apply and qualify for Social Security Disability Benefits when living with the inflammatory myopathies,...
Featured news, clinical trials, MSU updates and more.
Helpful hints (not resolutions!) to start off the new year with a plan to work toward great mental health...
Arimoclomol receives US Fast Track designation in sporadic Inclusion Body Myositis
, , Featured, Inclusion Body Myositis (IBM)
Orphazyme's Arimoclomol receives US Fast Track designation in sporadic Inclusion Body Myositis, an incurable rare progressively debilitating muscle-wasting disease...
Summary of Dysphagia in patients with sporadic inclusion body myositis: Management challenges
, , Featured, Inclusion Body Myositis (IBM)
A summary of the review, including Coping Strategies provided by MSU International Science Advisor and IBM patient, Bill Tillier....
In celebration of National Family Caregivers Month, TMA and MSU collaborated for a conversation about the challenges of caring...
Introduction to Ra Pharma & the Potential of Zilucoplan for the Treatment of IMNM Webinar
, , Featured, Video
Ben Matys, Sr. Clinical Trial Manager, and Ramin Farzaneh-Far, Chief Medical Officer of Ra Pharma, joined MSU) on November...
The Food and Drug Administration (FDA) regulates stem cell products in the U.S. and recently issued a warning about...
A Phase 2 Study of Zilucoplan in Patients with Immune-Mediated Necrotizing Myopathy
, , Featured, Necrotizing Autoimmune Myopathy, News
We are excited to announce our partnership with Ra Pharma for RA101495-02.202: A Phase 2 Study of Zilucoplan in...
Experience of pain and fatigue in adult idiopathic inflammatory myopathies (IIM)
, , Featured, News, Video
Watch the video, "Experience of pain and fatigue in adult idiopathic inflammatory myopathies (IIM)" with Helene Alexanderson, Ph.D. with...
In this video, Patrick Schmidt of FFF Enterprises and Michelle Vogel of CSI Pharmacy join MSU to explain the...
Myositis Support and Understanding (MSU) partners with the University of Pittsburgh for a new NIH-sponsored study entitled, “Myositis Patient...
Michelle Vogel of CSI Pharmacy, a sponsor of MSU and MyositisLIFE.org, provides information about the national Ig shortage. These...
Announcing the Mary Jane DeLauder Memorial Fund for inclusion body myositis
, , Featured, Inclusion Body Myositis (IBM), News, Press
Mary Jane's passion for welcoming and educating was well-known throughout the myositis community. That’s why we can think of...
Skin findings seen with myositis autoantibodies and treatment of skin in dermatomyositis
, , Dermatomyositis, Featured, News, Video
Dr. Victoria Werth joined us live online for a video education session titled, "Skin findings seen with myositis autoantibodies...
Plasma Services Group (PSG) joined us for a live video discussion about donating plasma for medical research. You could...
CSI Pharmacy joined us for a live video education session about IG therapy, both IVIG and SCIG. Health insurance...
A session that covered safety and effects of exercise in recent onset and established adult and juvenile IIM. Dr....
In observance of Myositis Awareness Month during the month of May, MSU has launched a new patient and caregiver...
Yoga and meditation offer a wealth of opportunities to seniors and caregivers. While both practices might appear complex on...
The success of the Registry effort depends on the cooperative efforts of IBM patients around the world. The IBM...
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sIBM Patient Video Support session, January 2020, 5 PM ET
January 31 @ 5:00 pm - 6:30 pm EST
