Dermatomyositis and Sun Protection, Dr. Graham makes it clear the sun can cause flares. She talks about sunscreens and...
Featured news, clinical trials, MSU updates and more.
Dr. Graham educates about the skin manifestations of myositis, sharing the various DM rashes, cosmetic cover-ups, information and tips...
Co-authors of “Pain profile and opioid medication use in patients with idiopathic inflammatory myopathies”, published in Rheumatology discuss the...
The Power of Our Voice: FDA Listening Session for Adult DM Webinar
, , Dermatomyositis, Featured, News, Video
Watch the recording of our fireside chat, The Power of Our Voice: FDA Listening Session for Adult Dermatomyositis, where...
View the summary of our first-ever FDA Listening Session on Adult Dermatomyositis. This was an opportunity to facilitate the...
Izandra Rudolph-Heard, our new Community Outreach Advisor for Research who is currently pursuing her Masters of Education in Mental...
The team from CSI Pharmacy and two patient experts joined to answer your questions about Ig therapy, IVIG and...
Pain profile and opioid medication use in patients with idiopathic inflammatory myopathies
, , Featured, News, Research
We are excited to announce our first publication, “Pain profile and opioid medication use in patients with idiopathic inflammatory...
Watch the recording with Alexion Pharmaceuticals to learn about the Flex Study to evaluate the safety and efficacy of...
Myositis patients and caregivers are invited to participate in a survey to help us understand how myositis impacts certain...
MSU is excited to welcome Abhiram R. Bhashyam, MD, Ph.D., Hand and Upper Extremity Orthopaedic Surgeon at Massachusetts General...
Intravenous Immune Globulin (IVIg) – A newly approved therapeutic option for the treatment of adult dermatomyositis
, , Featured, Myositis Treatments, Research
Watch to learn about Octapharma’s IVIg therapy and the results of the landmark Progress in Dermatomyositis (ProDERM) study. The...
Myositis Support and Understanding announces reaching a milestone of giving $250k in myositis patient financial assistance.
Watch Poor Long-term Clinical Outcomes and Health-Related Quality of Life in Dermatomyositis and Polymyositis
, , Featured, Research
Dermatomyositis (DM) and polymyositis (PM) are rare autoimmune inflammatory myopathies characterized by muscle weakness and multiple extra-muscular manifestations that...
Excited to announce that our study “Pain profile and opioid medication use in myositis “ will be presented at...
MSU is hosting the first FDA Listening Session on Adult Dermatomyositis on April 26, 2022. We hope the FDA will come...
Plasma Services Group (PSG) provides an update on what your samples are being used for and how important it...
AllStripes was honored to host this webinar with the Myositis Support and Understanding Association to discuss our current and...
Cannabis and Autoimmune Disease. Nurse and Cannabis Health Coach, Christine Lee, BSN, PHN, RN joined MSU to share about...
Seeking ten (10) people living with Dermatomyositis who would be willing to share their personal experience in a market...
