Manuel Lubinus, MBA, Ph.D. has been appointed to our newly created Scientific Advisory Board as Patient-Centric Research Advisor and...
Featured news, clinical trials, MSU updates and more.
Meet two people with myositis who are living their lives with purpose and positivity. Holly Jones and Rhonda Rogers...
Third Annual “A Day of Remembrance” a video event to honor and remember those we have lost with myositis....
Educational and engaging discussion w/ Dr. Andrew Mammen around immune-mediated necrotizing myopathy (IMNM) and the phase 2 clinical trial...
Learn how not forgiving others negatively impacts us, not the person we don’t want to forgive. We’ll look at...
This introduction to pain management will cover what chronic pain is and isn’t, different types of pain and their...
Myositis Support and Understanding (MSU) announces the formation of its Diversity, Equity, and Inclusion Committee
, , Featured, News
MSU’s Diversity, Equity, and Inclusion Committee's goal is to amplify more wide-ranging voices, while increasing MSU’s ability to serve...
Watch to learn about safety, from fall prevention to the response for myositis patients and caregivers. Includes demonstrations and...
Trusted resources and updates about the coronavirus (COVID-19) pandemic and myositis, including newly updated information and resources to help...
Watch for information to help guide your local physical and occupational therapy teams such as what should be included...
MSU supports our myositis community members who are Black and are other People of Color (POC)
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Until systemic oppression is addressed in policing, education, medicine, and in countless other places, we will never be able...
Learn about plasma donation and invite your family and friends to donate to help prevent a shortage of immunoglobulin...
Paul shares five important elements at the Heart of Caregiving from his own personal experience and story as a...
Managing Myositis Patient Care During the COVID-19 Public Health Crisis
, , Featured, Myositis, Video
Dr. Aggarwal answers patient-submitted questions about COVID-19 and myositis with topics including proper precautions to stay safe, information about...
Occupational therapists Megan McGowan and Lauren Burgess, and physical therapists Fin Mears and Ruben Pagkatipunan Jr., discuss and demonstrate...
Watch the webinar as we welcome Babette Reeves, MA, MSW, LCSW, Behavioral Medicine Specialist, and she shares tools for...
Partner Spotlight: How Myositis Support and Understanding Association adapts and stays nimble
Charlene Fernandez of RDMD put MSU in the spotlight for Myositis Awareness Month, May 2020. Read the article to learn about MSU and two of the board members who also manage daily operations, and who are also living with myositis themselves.
Read the full article at https://www.rdmd.com/blog/partner-spotlight-myositis-supportand-understanding-association
Learn more about the RDMD and MSU partnership.
Make your own fabric masks with this helpful information and some how-to videos for sew and no-sew fabric masks...
Learn more about using Zoom for MSU video support, activity and education sessions. Keeping software updated is important, as...
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