In observance of Myositis Awareness Month during the month of May, MSU has launched a new patient and caregiver...
Featured news, clinical trials, MSU updates and more.
May is Myositis Awareness Month and we want to introduce our brand new website where your experiences get the...
Yoga and meditation offer a wealth of opportunities to seniors and caregivers. While both practices might appear complex on...
The success of the Registry effort depends on the cooperative efforts of IBM patients around the world. The IBM...
An Update on the Clinical Studies Using Arimoclomol as a Potential Treatment for Sporadic Inclusion Body Myositis Video
, , Featured, Inclusion Body Myositis (IBM)
The ongoing Arimoclomol Clinical Trial for sIBM continues to generate a lot of questions from our community. As part...
The Performance of the EULAR/ACR IIM classification criteria in an expert-defined 10 year incident cohort
, , Featured, Myositis
This paper assesses the performance of EULAR/ACR classification criteria in a cohort of IIM cases and examines how subtypes...
Learn about how clinical trials work in this educational and interactive video session led by Lindsey Wahlstrom-Edwards, Head of...
Alyssa Smith wrote and sings a new song, "Save Me" and it will premiere on Feb. 28th, Rare Disease...
Identification of Predictors for Interstitial Lung Disease in Myositis Patients: A Systematic Review
, , Featured, Myositis, News
Interstitial lung disease (ILD) is a well-recognized complication in the spectrum of diseases known as the idiopathic inflammatory myopathies...
Introducing the NEW Myositis Support Community! The Myositis Support Community is similar to Facebook, however, it provides a more...
We are excited to announce a new collaboration with RDMD, a company that aims to jumpstart research for patients...
Join MSU in celebrating Rare Disease Day, Feb. 28th, and Rare Disease Week on Capitol Hill. We are also...
DETERMINE - a Phase 3 trial designed to evaluate the efficacy and safety of lenabasum for the treatment of adults...
The first step when approaching a patient with muscle weakness – Differential diagnosis of idiopathic inflammatory myopathies in adults
, , Featured, Myositis
Information on the differential diagnosis of adults with muscle weakness. Differential diagnosis is the process of distinguishing a specific...
MSU has come a long way since the beginning in 2010 with our first Facebook support group and subsequent...
Corbus launches DETERMINE, a Phase 3 trial of lenabasum for the treatment of dermatomyositis
, , Dermatomyositis, Featured, News
New locations announced. DETERMINE is a double-blind, placebo-controlled 1-year study designed to test the efficacy and safety of lenabasum...
Myositis and Cancer: Risk highest for carriers of anti-TIF1 antibody
, , Dermatomyositis, Featured, News
The research found that DM patients with the anti-transcriptional intermediary factor 1 (anti-TIF1) antibody were more than three times...
The authors propose that a new classification system for Idiopathic Inflammatory Myopathies (IIM) based on phenotypic (observable characteristics), biologic...
MSU is just getting started. You see, as long as there are still people dying from the various myositis...
EULAR/ACR Classification Criteria for Adult and Juvenile Idiopathic Inflammatory Myopathies and Their Major Subgroups
, , Featured, News
Clinical trials and studies require patient groups in clearly defined categories, but the multiple diagnostic and classification criteria used...
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Upcoming Events
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A Day of Remembrance
May 26 @ 2:00 pm - 3:00 pm EDT -
Skin findings seen with myositis autoantibodies and treatment of skin in dermatomyositis
May 28 @ 4:00 pm - 5:00 pm EDT
