The COVID vaccine is here, but what does that mean for us with myositis? MSU provides answers to some...
Featured news, clinical trials, MSU updates and more.
Megan McGowen and Lauren Burgess, Occupational Therapy, and Fin Mears, Physical Therapy, with the Johns Hopkins Myositis Center discuss...
AllStripes provides an update on the inclusion body myositis (IBM) research program and the video includes a step-by-step walkthrough...
After Diagnosis: The Burden of Care and the Evolving Doctor/Patient Relationship
, , Featured, Video
Dr. Salman Bhai joins MSU to share best practices related to myositis care and empowers you to seek the...
Flip Negativity
, , Featured, Video
Learn practical techniques on how to flip negativity and tame irrational thinking patterns, how to reframe our attitude about...
Meet Dr. Bhai who is working together with MSU, collaborating on myositis patient-centered research, patient education, grants, and improving...
Learn what trauma is and isn’t, one theory of how it develops, and how it impacts the nervous system,...
Young adults living with rare diseases have many unmet needs and many life decisions that can be impacted by...
Manuel Lubinus, MBA, Ph.D. has been appointed to our newly created Scientific Advisory Board as Patient-Centric Research Advisor and...
Meet two people with myositis who are living their lives with purpose and positivity. Holly Jones and Rhonda Rogers...
Third Annual “A Day of Remembrance” a video event to honor and remember those we have lost with myositis....
Educational and engaging discussion w/ Dr. Andrew Mammen around immune-mediated necrotizing myopathy (IMNM) and the phase 2 clinical trial...
Learn how not forgiving others negatively impacts us, not the person we don’t want to forgive. We’ll look at...
This introduction to pain management will cover what chronic pain is and isn’t, different types of pain and their...
Myositis Support and Understanding (MSU) announces the formation of its Diversity, Equity, and Inclusion Committee
, , Featured, News
MSU’s Diversity, Equity, and Inclusion Committee's goal is to amplify more wide-ranging voices, while increasing MSU’s ability to serve...
Watch to learn about safety, from fall prevention to the response for myositis patients and caregivers. Includes demonstrations and...
Trusted resources and updates about the coronavirus (COVID-19) pandemic and myositis, including newly updated information and resources to help...
Watch for information to help guide your local physical and occupational therapy teams such as what should be included...
MSU supports our myositis community members who are Black and are other People of Color (POC)
, , Featured, News, Take Action
Until systemic oppression is addressed in policing, education, medicine, and in countless other places, we will never be able...
Learn about plasma donation and invite your family and friends to donate to help prevent a shortage of immunoglobulin...
Get Support!
Upcoming Events
Sat
30
Monthly Necrotizing Myopathy Patient Video Support session
January 30 @ 3:00 pm - 4:30 pm EST
