Michelle Vogel of CSI Pharmacy, a sponsor of MSU and MyositisLIFE.org, provides information about the national Ig shortage. These...
Featured news, clinical trials, MSU updates and more.
Announcing the Mary Jane DeLauder Memorial Fund for inclusion body myositis
, , Featured, Inclusion Body Myositis (IBM), News, Press
Mary Jane's passion for welcoming and educating was well-known throughout the myositis community. That’s why we can think of...
Skin findings seen with myositis autoantibodies and treatment of skin in dermatomyositis
, , Dermatomyositis, Featured, News, Video
Dr. Victoria Werth joined us live online for a video education session titled, "Skin findings seen with myositis autoantibodies...
Plasma Services Group (PSG) joined us for a live video discussion about donating plasma for medical research. You could...
CSI Pharmacy joined us for a live video education session about IG therapy, both IVIG and SCIG. Health insurance...
A session that covered safety and effects of exercise in recent onset and established adult and juvenile IIM. Dr....
In observance of Myositis Awareness Month during the month of May, MSU has launched a new patient and caregiver...
Yoga and meditation offer a wealth of opportunities to seniors and caregivers. While both practices might appear complex on...
The success of the Registry effort depends on the cooperative efforts of IBM patients around the world. The IBM...
An Update on the Clinical Studies Using Arimoclomol as a Potential Treatment for Sporadic Inclusion Body Myositis Video
, , Featured, Inclusion Body Myositis (IBM)
The ongoing Arimoclomol Clinical Trial for sIBM continues to generate a lot of questions from our community. As part...
The Performance of the EULAR/ACR IIM classification criteria in an expert-defined 10 year incident cohort
, , Featured, Myositis
This paper assesses the performance of EULAR/ACR classification criteria in a cohort of IIM cases and examines how subtypes...
Learn about how clinical trials work in this educational and interactive video session led by Lindsey Wahlstrom-Edwards, Head of...
Alyssa Smith wrote and sings a new song, "Save Me" and it will premiere on Feb. 28th, Rare Disease...
Identification of Predictors for Interstitial Lung Disease in Myositis Patients: A Systematic Review
, , Featured, Myositis, News
Interstitial lung disease (ILD) is a well-recognized complication in the spectrum of diseases known as the idiopathic inflammatory myopathies...
Introducing the NEW Myositis Support Community! The Myositis Support Community is similar to Facebook, however, it provides a more...
We are excited to announce a new collaboration with RDMD, a company that aims to jumpstart research for patients...
Join MSU in celebrating Rare Disease Day, Feb. 28th, and Rare Disease Week on Capitol Hill. We are also...
DETERMINE - a Phase 3 trial designed to evaluate the efficacy and safety of lenabasum for the treatment of adults...
The first step when approaching a patient with muscle weakness – Differential diagnosis of idiopathic inflammatory myopathies in adults
, , Featured, Myositis
Information on the differential diagnosis of adults with muscle weakness. Differential diagnosis is the process of distinguishing a specific...
MSU has come a long way since the beginning in 2010 with our first Facebook support group and subsequent...
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Upcoming Events
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Myositis Patient Video Support Session, July 20, 2019
July 20 @ 2:00 pm - 3:30 pm EDT -
IBM Patient Video Support Session, July 2019
July 26 @ 4:00 pm - 6:00 pm EDT
