Featured news, clinical trials, MSU updates and more.
, , Featured, Inclusion Body Myositis (IBM)
The ongoing Arimoclomol Clinical Trial for sIBM continues to generate a lot of questions from our community. As part...
, , Featured, Myositis
This paper assesses the performance of EULAR/ACR classification criteria in a cohort of IIM cases and examines how subtypes...
Learn about how clinical trials work in this educational and interactive video session led by Lindsey Wahlstrom-Edwards, Head of...
Alyssa Smith wrote and sings a new song, "Save Me" and it will premiere on Feb. 28th, Rare Disease...
, , Featured, Myositis, News
Interstitial lung disease (ILD) is a well-recognized complication in the spectrum of diseases known as the idiopathic inflammatory myopathies...
Introducing the NEW Myositis Support Community! The Myositis Support Community is similar to Facebook, however, it provides a more...
We are excited to announce a new collaboration with RDMD, a company that aims to jumpstart research for patients...
Join MSU in celebrating Rare Disease Day, Feb. 28th, and Rare Disease Week on Capitol Hill. We are also...
DETERMINE - a Phase 3 trial designed to evaluate the efficacy and safety of lenabasum for the treatment of adults...
, , Featured, Myositis
Information on the differential diagnosis of adults with muscle weakness. Differential diagnosis is the process of distinguishing a specific...
MSU has come a long way since the beginning in 2010 with our first Facebook support group and subsequent...
, , Dermatomyositis, Featured, News
Corbus launches DETERMINE, a Phase 3 trial of lenabasum for the treatment of dermatomyositis. Double-blind, randomized, placebo-controlled, efficacy and...
, , Dermatomyositis, Featured, News
The research found that DM patients with the anti-transcriptional intermediary factor 1 (anti-TIF1) antibody were more than three times...
The authors propose that a new classification system for Idiopathic Inflammatory Myopathies (IIM) based on phenotypic (observable characteristics), biologic...
MSU is just getting started. You see, as long as there are still people dying from the various myositis...
, , Featured, News
Clinical trials and studies require patient groups in clearly defined categories, but the multiple diagnostic and classification criteria used...
, , Featured, Inclusion Body Myositis (IBM)
The purpose of this article is to describe advancements in the diagnosis of Inclusion Body Myositis (IBM) and therapy...
One of our goals is to provide inclusion body myositis patients with access to research. MSU is excited to...
, , Featured, News
In this study, the researchers set out to determine if there was a distinction between the type of autoantibodies...
, , Featured, Necrotizing Autoimmune Myopathy
Statins are drugs that lower cholesterol. There have been reports indicating that statin use may be associated with idiopathic...
May is Myositis Awareness Month.
Learn more about what we are doing!As an organization in the rare community, we recognize that by collaborating with others we can do more than acting alone. We have committed to THRIVE to empower others in the rare community. Join us at thriveforrare.org
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