Stephen Moore, a Neuroscientist at the University of Alabama (UAB), joined the Myositis Support and Understanding (MSU) Patient-Centered Research Team. Stephen will lead MSU’s Patient-Focused CME Project and coordinate dermatomyositis projects.
Stephen is a young, budding neuroscientist who has been doing translational biomedical research at the University of Alabama School of Medicine for over a decade. While Stephen was working on his Ph.D. in Biomedical Sciences with an emphasis in Neuroscience, he conducted research on a variety of projects from DARPA-funded grants on learning and memory, from utilizing postmortem human brains to study brain interconnectivity via a variety of chemical signals. And most recently, he conducted studies into neuromuscular diseases. Stephen built multiple translational pipelines from the worm gonad to the hospital clinic, focusing on developing novel diagnostics and therapeutics for motor neuron disease.
Stephen’s passion lies in advancing research efforts in neuromuscular diseases and autoimmunity, as well as working with non-profit organizations to provide advocacy, education, and fundraising that supports patients and caregivers living with the uncertainties of these diseases.
Stephen was diagnosed with Dermatomyositis in 2012. Looking back, he was suffering from symptoms for many years before his diagnosis. He promptly read all the literature about Dermatomyositis and tried to comprehend every aspect of the disease. Stephen knew there was always a higher chance of developing cancer with Dermatomyositis and that came to fruition in June of 2020. He was diagnosed with Renal Cell Carcinoma. Fortunately, as of today, his treatments appear to have been a success. His journey, like others with myositis, is filled with inspiration and resilience, and a passion to do more to help others who suffer from this debilitating disease.
Stephen epitomizes MSU’s approach to Patient-Centered Research by bringing his expertise and commitment to research projects that will demonstrate immediate impact on the myositis patient’s quality of life.
You can read about MSU and Patient-Centered Research here
You can read Stephen’s full bio here
Tags: advocacy myositis research patient-centered research
Congratulations Stephen!!!