Announcing our new, customized App for myositis!
We announced at the beginning of this year, 2018, our goal to create an App for the myositis community. We are happy to announce that the first phase of this app is now available for iPhone users.
We have entered into a partnership with Portable Genomics to enable people with myositis to better collect, manage and share important health data with treatment teams, researchers and the pharmaceutical industry.
The data you track and collect, for your own use, is secured on your smartphone and personal cloud. If you consent to share data for research purposes your personal information is scrubbed to protect your privacy; you have the ability to opt in or out of sharing at any time.
This is a pilot study of the App and is currently only available on the Apple iPhone and iPod Touch; this is for security reasons.
As part of our recommended journaling practices, we suggest tracking symptoms, abilities, medications and treatments, falls, pain, exercise, and nutrition, among many other factors, and to keep copies of lab reports, imaging studies and reports, and photos of skin rashes.
The NuMe app for myositis enables patients to track all of these recommended pieces through manual entry, importing data, and adding photos and notes. The app provides additional advantages including the capability to share this data with their caregivers, healthcare partners, and eventually with pharmaceutical companies and researchers to help further myositis research, clinical trials, and drug development.
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Subscribe to our general myositis-related email updates. If you are a member of MSU, you will automatically recieve these updates and there is no need to subscribe here. To register for your free MSU membership and access to The Myositis Community Network, visit UnderstandingMyositis.org/register