Myositis Support and Understanding understands and appreciates the important role that caregivers and care partners play in helping to manage their loved one’s disease. They are the rock and foundation for any patient living with Myositis. Without them, their loved one may feel alone, isolated, and may not be able to do the things they enjoy.
Caregivers are instrumental in helping to manage their loved one’s health by going to doctor visits and asking questions, taking notes, and explaining things that the patient may forget. Caregivers are a part of the “invisible healthcare team” and we work to acknowledge them so they are recognized and even rewarded for their hard work.
In an effort to help caregivers succeed, we have compiled some helpful resources.
Share your story to empower other caregivers
Myositis caregivers and care partners each have a unique story to tell that can help educate others going through the same experiences.
Each form of myositis is different and brings unique challenges. Whether they are specific adaptations you have made in your home or daily life to help make thing easier or how you have created a journal or schedule that helps keep your better organized and prepared for unexpected circumstances.
Share your unique story with us so we can share it publicly.