This is a collection of personal, user submitted stories.
We learn from the experiences of others, so we want Myositis patients, caregivers, family members, and friends to share their stories of what life is like living with the rare disease, Myositis, and its subtypes.
A touching personal story from the daugher of a myositis patient remembering that her Dad, her longtime hero, ...
What I find myself thinking about now, for the first time, in any detail, is who I was at...
A wife, sister, soldier, student, and a daughter. Life was great. 22 years old and nothing seemed impossible. The...
I truly have a passion and desire to prevent others from going through what I've gone through! I...
Mental Health and Myositis Awareness Month’s meet, Jerry shares his story
, , Featured, Personal Stories
May is both Myositis and Mental Health Awareness Month and Jerry Williams, Founder and President of MSU shares the...
Although everyday life seems like a mad dash to the finish line honestly it’s all about staying the course...
Mums journey was a very difficult one. I remember her first fall the day I gave birth to...
She Said, He Said - Part 1: Myositis muscle weakness. Part one of the series by Emily Filmore and...
"My daughter is my first priority, always. There are days when brushing my hair is hard, showering is a...
Over the next few days, I would wake up every other morning with my eyes swollen, to the point I...
There were several things about myself over the years that by age 39 seemed a given; I was small...
Before Dermatomyositis I was a pretty healthy guy. I was in good shape, went to the gym 7 days...
Myositis Awareness Day And My Husband’s Diagnosis by Guest Author, Barbara Naturally Speaking It’s been almost three years since...
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