A touching personal story from the daugher of a myositis patient remembering that her Dad, her longtime hero, ...
This is a collection of personal, user submitted stories.
We learn from the experiences of others, so we want Myositis patients, caregivers, family members, and friends to share their stories of what life is like living with the rare disease, Myositis, and its subtypes.
I'm about to share a bit about myself that may be scary or shocking. I am certainly exposing some...
She Said, He Said - Part 1: Myositis muscle weakness. Part one of the series by Emily Filmore and...
5 Week Road trip to Yellowstone with IBM Adventurers by guest author Camille Lesoine Ray and I are back...
Choose your language
- Myositis Awareness & Action
- Myositis Empower Walk
- The Grieving Project
- Explore Myositis
- Financial Assistance Program
- #ItsMyTurn: Becoming a Plasma Donor Hero
- Myositis Clinical Trials
- Myositis Webinars
- Upcoming Events
- Donate today!