A touching personal story from the daugher of a myositis patient remembering that her Dad, her longtime hero, ...
This is a collection of personal, user submitted stories.
We learn from the experiences of others, so we want Myositis patients, caregivers, family members, and friends to share their stories of what life is like living with the rare disease, Myositis, and its subtypes.
What I find myself thinking about now, for the first time, in any detail, is who I was at...
A wife, sister, soldier, student, and a daughter. Life was great. 22 years old and nothing seemed impossible. The...
I truly have a passion and desire to prevent others from going through what I've gone through! I...
I'm about to share a bit about myself that may be scary or shocking. I am certainly exposing some...
Although everyday life seems like a mad dash to the finish line honestly it’s all about staying the course...
Mums journey was a very difficult one. I remember her first fall the day I gave birth to...
Sorry if my grammar is not good. I’m not fluent in English. I’m Akira 23 years old and lives...
She Said, He Said - Part 1: Myositis muscle weakness. Part one of the series by Emily Filmore and...
"My daughter is my first priority, always. There are days when brushing my hair is hard, showering is a...
In sickness and in health My love affair with Dermatomyositis started on the 14th February 2004 aged 22. Maybe...
Over the next few days, I would wake up every other morning with my eyes swollen, to the point I...
There were several things about myself over the years that by age 39 seemed a given; I was small...
Lift Your Voice and Let Your Light Shine I was asked if I would be interested in sharing my...
Choices by guest author, Pat My name is Pat, I am a 56 year old mother of two, grandmother...
5 Week Road trip to Yellowstone with IBM Adventurers by guest author Camille Lesoine Ray and I are back...
My new life,with Polymyositis by guest author, Sandra Hello my name is Sandra. I have a rare autoimmune disease...
Before Dermatomyositis I was a pretty healthy guy. I was in good shape, went to the gym 7 days...
Myositis Awareness Day And My Husband’s Diagnosis by Guest Author, Barbara Naturally Speaking It’s been almost three years since...
I wasn’t expecting to be dealing with an autoimmune disease, let alone at 27 years old, but these are...
Upcoming Events
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Myositis Patient Video Support Session, November 17, 2018
November 17 @ 2:00 pm - 3:30 pm EST -
IBM Patient Video Support Session, November 2018
November 30 @ 4:00 pm - 6:00 pm EST -
IBM Patient Video Support Session, December 2018
December 28 @ 4:00 pm - 6:00 pm EST
Recent Articles
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EULAR/ACR Classification Criteria for Adult and Juvenile Idiopathic Inflammatory Myopathies and Their Major Subgroups November 5, 2018
Clinical trials and studies require patient groups in c...
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Advances in the Early Diagnosis and Therapy of Inclusion Body Myositis October 28, 2018
The purpose of this article is to describe advancements...
