Submit your loved one's name, In Memory

Please submit by May 13, 2019, to have your loved one remembered in the live streaming event, "A Day of Remembrance" during Myositis Awareness Month, May 2019.

Submit the name of your loved one who died due to myositisShare with us the name of a loved one, family member, or friend who lost their life fighting Myositis so they can be featured on the live YouTube streaming video event that will take place during Myositis Awareness Month, May 2019.

In previous years, MSU has asked the community to observe a moment of silence; this year in addition to a private moment of silence, we are doing more to ensure we never forget those who fought so hard, in participation with several caring sponsors committed to the myositis community and research.

While honoring their memory and expressing the sadness of these losses–losses that mean a great deal to our community–we can help others realize the urgent need for continued education at all levels, new and effective therapies, rare disease patients to get involved in clinical trials, and better understanding and increased awareness, all keys in helping to fund nonprofit work and myositis research.

Use the form below to submit your loved one’s information by May 13, 2019.

Watch 2018 Day of RemembranceOn our YouTube Channel Subscribe to our YouTube channelEducational Myositis Videos

Terms and Agreement:

By uploading this photo and providing this anecdotal information about a deceased person I certify that I possess the right to publish the photo and share information about the deceased person and their cause of death, including the surrounding circumstances as related to Myositis.

I further certify that to my knowledge this is the person I am stating him or her to be. I indemnify Myositis Support and Understanding Association (MSU), and it’s participating sponsors, from any liability for using the likeness and story in the awareness month “A Day of Remembrance” video, event promotion materials, and listing on the MSU website and public social networking sites.

In Memory

  • If different from above, please list how you would like your loved ones name to be displayed.
  • Share some information. This will be included in the video and helps other to better understand who we are remembering.
  • If you have videos of your loved one that you would like us to include, please let us know below. If they are on YouTube, please provide the links.
  • Drop files here or
    Accepted file types: jpg, jpeg, png, zip.
    Photos will be used in the live streaming YouTube event, in the event promotion materials, and on our website and social networking sites to honor and remember those we have lost.
  • By uploading this photo and providing this anecdotal information about a deceased person I certify that I possess the right to publish the photo and share information about the deceased person and their cause of death, including the surrounding circumstances as related to Myositis. I further certify that to my knowledge this is the person I am stating him or her to be. I indemnify Myositis Support and Understanding Association (MSU), and it's participating sponsors, from any liability for using the likeness and story in the awareness month “A Day of Remembrance” video, event promotion materials, and listing on the MSU website and public social networking sites.
    If you are a member of MSU, you do not need to subscribe as you will receive the emails.
    You must agree to the Terms and Agreement above in order for us to use the information you have provided.
  • This field is for validation purposes and should be left unchanged.

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