RARE. Talk with MSU: Grieving Rare Illness – Did you forget to grieve?
ClubhouseRARE. Talk with MSU: Grieving Rare Illness - Did you forget to grieve? with Lisa Sniderman, on Clubhouse, hosted by This is RARE, Monday, July 19, 2021, starting at 7 PM ET.
Taking Charge of your ILD and Myositis
MSU Zoom Video Session Video session using ZoomDr. Cheilonda Johnson is a pulmonologist who sees a lot of patients with interstitial lung disease (ILD) at the University of Pennsylvania in Philadelphia. She will be joining us to talk about ways to take charge of your ILD in a patient-centered webinar.
#MyositisLIFE: DM, PM and ASyS Patient Video Support
MSU Zoom Video Session Video session using ZoomIf you are living with dermatomyositis, polymyositis, or antisynthetase syndrome, join the third Wednesday of each month for support on Zoom.
‘Oh The Places You’ll Go’: Traveling and Exploring with Confidence
MSU Zoom Video Session Video session using ZoomWe’ll review any updated COVID-19 recommendations from the CDC, but spend the majority of the session focused on overcoming some of the challenges people with myositis face when traveling. Share your questions, tips and strategies during registration. Our events are always free. Register and join us on Monday, July 26th, 6 PM ET / 3 PM PT with Megan and Lauren, Occupational Therapists at Johns Hopkins Myositis Center.
#MyositisLIFE: IBM Patient Video Support
MSU Zoom Video Session Video session using ZoomRegister to join the MSU Inclusion body myositis real-time video support session, the last Friday of the month at 5 PM Eastern.
#MyositisLIFE: Necrotizing Myopathy Patient Video Support
MSU Zoom Video Session Video session using ZoomRegister to join the Immune-mediated necrotizing myopathy video support session, the last Saturday of the month at 7 PM Eastern.
#MyositisLIFE: Wednesday Evening Myositis Patient Video Support
MSU Zoom Video Session Video session using ZoomAll myositis patients, register to join us on the first Wednesday of each month at 7 PM ET for live video support.
#MyositisLIFE: Women with Myositis Zoom Support
MSU Zoom Video Session Video session using ZoomWomen living with any type of myositis, join the MSU crew for our new monthly Women with Myositis Video Support group! Join with camera on or off. First Monday's at 7 PM ET on Zoom.
#MyositisLIFE: Weekly Sunday Clubhouse Support
ClubhouseJoin our Club, Myositis Support, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
RARE Talk with MSU: Creating through chronic illness and grief
ClubhouseJoin MSU with Lisa Sniderman, creator of "The Grieving Project" on Clubhouse for the next RARE Talk with MSU, Creating through chronic illness and grief hosted by the club RareABILITY on Monday, Aug. 16th at 7 PM ET / 4 PM PT. Share what creating means to you, what art forms you have turned to, and more.
#MyositisLIFE: DM, PM and ASyS Patient Video Support
MSU Zoom Video Session Video session using ZoomIf you are living with dermatomyositis, polymyositis, or antisynthetase syndrome, join the third Wednesday of each month for support on Zoom.
#MyositisLIFE: Saturday Afternoon Myositis Patient Video Support
MSU Zoom Video Session Video session using ZoomAll myositis patients, register to join us on the third Saturday of each month at 3 PM ET for live video support.
#MyositisLIFE: Weekly Sunday Clubhouse Support
ClubhouseJoin our Club, Myositis Support, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.