RARE Talk
RARE. Talk with MSU: The Rare Journey Begins
ClubhouseJoin us for the launch of RARE. Talk with MSU: The RARE. Journey Begins on Clubhouse, Monday, June 7th, 7 PM ET, hosted by This is RARE. Join us and be an active participant, or join to listen in. The discussions will be authentic and sometimes raw. We look forward to meeting you! Open to everyone living with a rare, chronic illness.
RARE. Talk with MSU: Self-Advocate or Hypochondriac
ClubhouseRARE. Talk with MSU: Self-Advocate or Hypochondriac, on Clubhouse, hosted by This is RARE. How does your doctor respond when you bring research, talk about your goals, talk about pain? Join us to talk about how we can work to improve our doctor-patient relationships.
RARE. Talk with MSU: Grieving Rare Illness – Did you forget to grieve?
ClubhouseRARE. Talk with MSU: Grieving Rare Illness - Did you forget to grieve? with Lisa Sniderman, on Clubhouse, hosted by This is RARE, Monday, July 19, 2021, starting at 7 PM ET.
RARE Talk with MSU: Creating through chronic illness and grief
ClubhouseJoin MSU with Lisa Sniderman, creator of "The Grieving Project" on Clubhouse for the next RARE Talk with MSU, Creating through chronic illness and grief hosted by the club RareABILITY on Monday, Aug. 16th at 7 PM ET / 4 PM PT. Share what creating means to you, what art forms you have turned to, and more.