Week of Events
RARE. Talk with MSU: Self-Advocate or Hypochondriac
RARE. Talk with MSU: Self-Advocate or Hypochondriac
RARE. Talk with MSU: Self-Advocate or Hypochondriac, on Clubhouse, hosted by This is RARE. How does your doctor respond when you bring research, talk about your goals, talk about pain? Join us to talk about how we can work to improve our doctor-patient relationships.
#MyositisLIFE: IBM Patient Video Support
#MyositisLIFE: IBM Patient Video Support
Register to join the MSU Inclusion body myositis real-time video support session, the last Friday of the month at 5 PM Eastern.
#MyositisLIFE: Necrotizing Myopathy Patient Video Support
#MyositisLIFE: Necrotizing Myopathy Patient Video Support
Register to join the Immune-mediated necrotizing myopathy video support session, the last Saturday of the month at 7 PM Eastern.