Week of Events
#MyositisLIFE: Weekly Sunday Clubhouse Support
#MyositisLIFE: Weekly Sunday Clubhouse Support
Join our Club, Myositis Support, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
Poor Long-term Clinical Outcomes and Health-Related Quality of Life in Dermatomyositis and Polymyositis
Poor Long-term Clinical Outcomes and Health-Related Quality of Life in Dermatomyositis and Polymyositis
Register and join us on Rare Disease Day, Feb. 28th, for a presentation by Dr. Rohit Aggarwal reviewing current data on the long-term disease outcomes and the true impact of DM and PM on patient’s health-related quality of life.
#MyositisLIFE: Wednesday Evening Myositis Patient Video Support
#MyositisLIFE: Wednesday Evening Myositis Patient Video Support
All myositis patients, register to join us on the first Wednesday of each month at 7 PM ET for live video support.
Myositis Support Gets Moving on Clubhouse
Myositis Support Gets Moving on Clubhouse
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.