Educational and research-based information about the various forms of the rare diseases referred to as simply myositis and are estimated to affect 50-75K people in the U.S.
Find information about commonly associated complications and overlaps with myositis.
Additional studies and information coming soon!
We are a patient-centered, all-volunteer 501(c)(3) nonprofit organization, Empowering the Myositis Community! And, we are the leading myositis support network!
We all have experiences to share that will make a difference in the lives of other myositis patients and caregivers. They can also help promote more awareness and research for myositis. Check out our new #MyositisLIFE website launched May 1, 2019, and share yours!
Share your topic-based story, image, video, or meme.
Find help, tips, and resources to support you in your role. We will be adding more to this section over time.
Have you lost a loved one with myositis? Submit their information so we can remember them publicly during our Annual Day of Rememberance in May 2020.
May is Myositis Awareness Month! See how you can get involved!
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Shipping in the U.S. is included. International orders are welcome, but shipping is additional.
We ask that you allow 7-10 days for delivery.
9125 N. Old State Road
Lincoln, DE 19960 USA
T: 888-MYO-RARE (696-7273)
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MSU is an all-volunteer nonprofit so your donation goes further in helping empower the myositis community.
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Text MYOSITIS to 707070 to start your mobile donation!
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