20 Fun Activities for Myositis Patients


Autoimmune diseases such as polymyositis, dermatomyositis and inclusion body myositis may lead to the loss of a job or the need to file for disability due to the severity of our illness. No longer being able to work can be devastating and leave us with a ton of time on our hands without money to incorporate fun activities into our lives.

You do not have to have much to participate in some fun or thoughtful activities! Here are 20 things that we can do that cost little to nothing:

  • Sign up for a free online class
  • Read a book you already own
  • Watch free movies and TV shows online
  • Listen to music using YouTube, Spotify or other streaming audio apps
  • Go to the park or free zoo in your area
  • Write in your journal
  • Help someone else going through a tough time
  • Volunteer at a local charity
  • Watch the sunrise or sunset
  • Write a poem, your personal myositis story or other short story
  • Do arts and crafts and discover a hidden talent
  • Write a letter or make a card to send to a friend
  • Video chat with a far-away friend or one close by if you are home bound
  • Make a new recipe; Be brave
  • Do light exercises or stretching
  • Explore the internet for fun websites
  • Play free, online games
  • Start a new hobby or work on one you have already started
  • Have friends over for game or movie night
  • Join a support group for myositis

As you can see, there are many things we can do! Incorporating fun activities into our lives may help alleviate feelings of isolation, boredom and even depression.

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Myositis Support and Understanding Association (MSU) is a 501(c)(3) nonprofit organization with a mission to improve the day-to-day lives of Myositis patients. MSU is a patient-centered organization, founded by Myositis patients, for Myositis patients, and believes education, support, advocacy, and assistance are keys helping patients and caregivers. As a nonprofit, we rely on donations for funding and volunteers to help manage a fast growing organization.

View more information: Jerry Williams

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This year, 2017, Myositis Support and Understanding’s awareness month theme is “Sometimes Zebras have spots!” We want to raise awareness about how the experiences, symptoms, and complications of this rare disease are different, even among the patients with the same disease. Doctors are now trained, when you hear hoof beats, look for zebras (rarities), instead of horses (common ailments); when in the past, they only looked for the most common ailments.


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Hi, this may be interesting to you: 20 Fun Activities for Myositis Patients! The link is included below: https://understandingmyositis.org/20-activities-for-myositis-patients/ --- Myositis Support and Understanding is a 501(c)3 nonprofit organization.