Caregiver Action Network can help

Caregiver Action Network

“The Caregiver Community Action Network (CCAN) is a unique and highly dedicated group of over 100 volunteers in more than 40 states. Our CCAN volunteers reach out to family caregivers to provide education and support. They also teach caregivers to be advocates for themselves and their loved ones. “  You can join for free and get some much needed support! http://caregiveraction.org

They also have a web site dedicated to rare disease caregiving: http://www.rarecaregivers.org/

 

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Myositis Support and Understanding Association (MSU) is a 501(c)(3) nonprofit organization with a mission to improve the day-to-day lives of Myositis patients. MSU is a patient-centered organization, founded by Myositis patients, for Myositis patients, and believes education, support, advocacy, and assistance are keys helping patients and caregivers. As a nonprofit, we rely on donations for funding and volunteers to help manage a fast growing organization.

View more information: Jerry Williams

© Myositis Support and Understanding Association, Inc. 2010-2017. All Rights Reserved. MSU is a 501(c)(3) nonprofit organization.

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Get your Zebra Shirts & Hoodies Today!

Campaign for Myositis Awareness Month, May 2017

Purchasing a shirt from this booster will help us, Myositis Support and Understanding, with our many patient support programs, education, financial assistance for patients and upcoming programs.

This year, 2017, Myositis Support and Understanding’s awareness month theme is “Sometimes Zebras have spots!” We want to raise awareness about how the experiences, symptoms, and complications of this rare disease are different, even among the patients with the same disease. Doctors are now trained, when you hear hoof beats, look for zebras (rarities), instead of horses (common ailments); when in the past, they only looked for the most common ailments.

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Hi, this may be interesting to you: Caregiver Action Network can help! The link is included below: https://understandingmyositis.org/caregiver-action-network-can-help/ --- Myositis Support and Understanding is a 501(c)3 nonprofit organization.