In March 2012, after several days of low-grade temperatures and muscle aches, I noticed heaviness in my legs, like...
Archive for category: MyositisLIFE Story
This is a collection of user submitted content in the form of written stories designed to promote awareness and education about living with the rare disease, Myositis and its subtypes of Polymyositis, Dermatomyositis, Inclusion Body Myositis, and the Juvenile forms of Dermatomyositis and Polymyositis.
Ellen Armour and I, our life with Polymyositis

Stan shares his thoughts on his wife, Ellen, and her on-going battle with polymyositis.
Lekiha shares her poem, "Picture This, Myositis Will Not Win" for Myositis Awareness Month and MSU's #MyositisLIFE project.
Dermatomyositis does not have to stop you from pursuing your dreams. My journey had many challenges but I can...
Yvette shares her #MyositisLIFE, “Imagine That!,” a glimpse into being perfectly healthy and then becoming disabled in the blink...
My journey started in 2013. I was in the best physical shape in a long time. I started each...
Dear Dermatomyositis, I am writing you because I found out in January 2015 you were the culprit behind my...
I have Inclusion Body Myositis (IBM); a rare and degenerative muscle wasting disease. It is an autoimmune disease with...
Diagnosed with Dermatomyositis in 2012, I was looking for an easy (and interesting) way to share my story with...
Jerry Williams shares his #MyositisLIFE living with Polymyositis and overlap syndromes

MSU Founder and President, Jerry Williams, shares his #MyositisLIFE. He shares his commitment to helping other Myositis patients...
I am the their care giver you see me every where But what you don't see is just how I...
I have polymyositis , having been diagnosed 24 years ago. The diagnosis was confirmed after six months of testing. I...
I have Inclusion Body Myositis (IBM); a rare and degenerative muscle disease. It is an autoimmune disease with symptoms...
In December 2003 I began complaining about a burning sensation in my lower legs, so bad that it would...