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Care Giver, A poem by Stella, for Mavis

Stella shares her poem, “Care Giver,”  for Myositis Awareness Month and MSU’s #MyositisLIFE project. 

Care Giver

I am the their care giver you see me every where
But what you don’t see is just how I got to there
I didn’t set out to be a fixer of all things broken
Just someone who cares without words being spoken
I try to be a softer spot in a world sometimes dark
Pulling at both ends so their life won’t fall apart
I in truth feel like I should be doing so much more
Spending all of my day in and out the revolving door
I find that I am the court jester when times are truly sad
Dancing like a puppet when the news is often bad
I often am on autopilot as we hustle through our day
Hands grip the rolling chariot as we fight to find our way
I see people looking past her as if life is but a human race
Seldom will the stop to notice the worry upon our face
I want to scream as loud as I can how all lives really matter
But I find myself silenced by all of the mindless chatter
I feel like giving up on those that should but refuse to see
The million broken pieces that fill the days of her and me
I give of myself will a caring heart it’s what we all should do
One day we may find ourselves struggling to make it too
I will continue on you see it’s the path we were meant to share
To love someone wholeheartedly and show them that I care

For Mavis
With love, Stella
4/24/2016

 


 

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Myositis Support and Understanding Association (MSU) is a patient-centered, all-volunteer 501(c)(3) nonprofit organization Empowering the Myositis Community. Founded by Myositis patients, for Myositis patients, MSU provides education, support, advocacy, access to research and clinical trial matching, and need-based financial assistance.

View more information: Myositis Support

1 Comment
  1. Jerry Williams 5 years ago

    What a great poem, Stella! Thank you for sharing it with us and, for Mavis!

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