Calendar of Events
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Communicating with your doctor as a Myositis patient
Communicating with your doctor as a Myositis patient
In our first webinar, we will talk more about how the patient /doctor relationship is changing in myositis. What should you expect? How do you make your voice heard? Dr. Bhai welcomes your questions.
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Living with Myositis, An Awareness Month Discussion hosted by This is RARE.
Living with Myositis, An Awareness Month Discussion hosted by This is RARE.
This is RARE. is hosting Jerry Williams, founder and president of MSU on Clubhouse for "Living with Myositis, An Awareness Month Discussion." Join us on Clubhouse May 14th at 7 PM ET to listen in, and to be a part of the discussion.
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#MyositisLIFE: Saturday Afternoon Myositis Patient Video Support
#MyositisLIFE: Saturday Afternoon Myositis Patient Video Support
All myositis patients, register to join us on the third Saturday of each month at 3 PM ET for live video support.
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Myositis and COVID
Myositis and COVID
Mamatha Pasnoor, MD, is joining us to discuss Myositis and COVID including inflammation of muscles with COVID infection, vaccination with immunosuppressive therapies, and COVID infection in myositis patients.
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#MyositisLIFE: DM, PM and ASyS Patient Video Support
#MyositisLIFE: DM, PM and ASyS Patient Video Support
If you are living with dermatomyositis, polymyositis, or antisynthetase syndrome, join the third Wednesday of each month for support on Zoom.
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Hands-on PT for Myositis Patients
Hands-on PT for Myositis Patients
David Overby, a Physical Therapist with his own practice, is joining us to talk about Hands-On Physical Therapy for myositis patients, such as myofascial release. This is an exciting and unique session and we hope you will join us.
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Myositis Do-It-Yourself Accessibility Adaptations with Larry M.
Myositis Do-It-Yourself Accessibility Adaptations with Larry M.
Myositis group member, Larry shows us how he “Inspector Gadgets” his way through myositis. If you are interested in how he “MacGyver's” adaptations for things such as easier-to-use pens for hand weakness with fishing bobbers you are in for a treat! Join us!
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#MyositisLIFE: IBM Patient Video Support
#MyositisLIFE: IBM Patient Video Support
Register to join the MSU Inclusion body myositis real-time video support session, the last Friday of the month at 5 PM Eastern.
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#MyositisLIFE: Necrotizing Myopathy Patient Video Support
#MyositisLIFE: Necrotizing Myopathy Patient Video Support
Register to join the Immune-mediated necrotizing myopathy video support session, the last Saturday of the month at 7 PM Eastern.