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Living with Myositis, An Awareness Month Discussion hosted by This is RARE.

May 14, 2021 @ 7:00 pm - 9:00 pm EDT

Living with Myositis, An Awareness Month Discussion Friday, May 14th, 7 PM ET Jerry Williams, Featured Speaker

Living with Myositis, An Awareness Month Discussion
hosted on Clubhouse by This is RARE.

Advocates in Action Series hosted by RARE.

Featured Speaker: Jerry Williams

Friday, May 14, 2021, at 7:00 PM Eastern Time

Jerry Williams, the founder and president of Myositis Support and Understanding, is also a myositis patient. Jerry has experienced so many challenges along his journey with a refractory case of dermatomyositis, and he will lead a discussion called “Living with Myositis: An Awareness Month Discussion,” a part of the This is RARE. Advocates in Action series.

This event is only on Clubhouse, an audio-only social and networking app for your phone. Use the button below to join and listen in, and to be a part of the discussion if you choose!

Myositis is RARE

Shop RARE.

Shop the store that started it all, RARE.

Thanks to the owner of RARE., Kristine Hoestermann, for creating a Myositis Zebra design now available for print, t-shirt, sweatshirt, and Raglan.

Shop Myositis, and all RARE. apparel and items at https://findyourrare.com/collections/may-awareness-collection

About Clubhouse

Clubhouse is an audio-only, drop-in app for networking, information, and even support. It is now available on both iOS and Android. To join the event, use the link provided to bypass the waiting area.

MSU Facebook page

Be sure to visit and “Like” our public Facebook page for special events, articles, videos, and patient and caregiver opportunities.Visit us on Facebook »

Myositis Awareness Month

May is Myositis Awareness Month! Join us all month-long and Take Action with MSU and with our partners and sponsors to help move the myositis community forward. Check out our Myositis Awareness page for some ways you can make a difference in myositis research, advocacy, awareness, and fundraising.Learn more »

Upcoming support and education sessions

Event starts in . . .

2021/05/14 19:00:00



May 14, 2021
7:00 pm - 9:00 pm EDT
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Myositis Support and Understanding (MSU)
View Organizer Website


Suggested Audience
Open to the public

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