Calendar of Events
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1 event,
#MyositisLIFE: Weekly Sunday Clubhouse Support
#MyositisLIFE: Weekly Sunday Clubhouse Support
Join our Club, Myositis Support, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
1 event,
Men with Myositis Clubhouse Support Room
Men with Myositis Clubhouse Support Room
A safe space for men with myositis to discuss physical and mental health, barriers, pitfalls, and struggles, and to make meaningful connections.
0 events,
1 event,
#MyositisLIFE: Wednesday Evening Myositis Patient Video Support
#MyositisLIFE: Wednesday Evening Myositis Patient Video Support
All myositis patients, register to join us on the first Wednesday of each month at 7 PM ET for live video support.
1 event,
Myositis Support Gets Moving on Clubhouse
Myositis Support Gets Moving on Clubhouse
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
0 events,
0 events,
1 event,
#MyositisLIFE: Weekly Sunday Clubhouse Support
#MyositisLIFE: Weekly Sunday Clubhouse Support
Join our Club, Myositis Support, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
0 events,
0 events,
1 event,
What Brings You Joy?
What Brings You Joy?
Whether you love to cook, sing, dance, paint, work in your garden, or love on your children/grandchildren/furry friends, MSU wants to know what brings you JOY each day! Register to join Lisa Sniderman, creator of The Grieving Project, and Jessica Taylor on Zoom for this fun-filled event, sharing what you are most passionate about.
1 event,
Myositis Support Gets Moving on Clubhouse
Myositis Support Gets Moving on Clubhouse
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
0 events,
1 event,
#MyositisLIFE: Women with Myositis Zoom Support
#MyositisLIFE: Women with Myositis Zoom Support
Women living with any type of myositis, join the MSU crew for our new monthly Women with Myositis Video Support group! Join with camera on or off. First Monday's at 7 PM ET on Zoom.
1 event,
#MyositisLIFE: Weekly Sunday Clubhouse Support
#MyositisLIFE: Weekly Sunday Clubhouse Support
Join our Club, Myositis Support, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
0 events,
1 event,
Clinical Study in Dermatomyositis
Clinical Study in Dermatomyositis
Join MSU with Sanjay Rakhade MD, PhD, Executive Medical Director at Alexion Astra Zeneca Rare Disease Unit to learn about the Flex Study, a study to evaluate the safety and efficacy of an investigational medication on reducing symptoms of adults with Dermatomyositis.
1 event,
#MyositisLIFE: DM, PM and ASyS Patient Video Support
#MyositisLIFE: DM, PM and ASyS Patient Video Support
If you are living with dermatomyositis, polymyositis, or antisynthetase syndrome, join the third Wednesday of each month for support on Zoom.
2 events,
Myositis Support Gets Moving on Clubhouse
Myositis Support Gets Moving on Clubhouse
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
Immune Globulin Therapy: All your questions answered
Immune Globulin Therapy: All your questions answered
Join MSU for a webinar with CSI Pharmacy, Immune Globulin Therapy: All your questions answered. This is your opportunity to ask the experts, including patient experts, the questions you have about the therapy such as side effects, brand differences, IV vs SubQ, site of care, insurance, out-of-pocket costs, copay assistance programs and more.
0 events,
0 events,
1 event,
#MyositisLIFE: Weekly Sunday Clubhouse Support
#MyositisLIFE: Weekly Sunday Clubhouse Support
Join our Club, Myositis Support, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
0 events,
0 events,
1 event,
The Power of Our Voice: FDA Listening Session for Adult Dermatomyositis
The Power of Our Voice: FDA Listening Session for Adult Dermatomyositis
The power of our voice can impact the direction of research and clinical trials. Join us for a virtual Fireside Chat on the lessons learned from our FDA Listening Session for Adult Dermatomyositis.
2 events,
Myositis Support Gets Moving on Clubhouse
Myositis Support Gets Moving on Clubhouse
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
Simple steps to focus on your emotional wellbeing with Lori Wong
Simple steps to focus on your emotional wellbeing with Lori Wong
Join us for a free interactive workshop with Lori Wong, a person living with inclusion body myositis and retired Stanford-certified Compassion Cultivation Training (CCT) teacher to explore evidence-based steps to support your mental well-being, which are just as important as the steps you take to care for your physical body.
1 event,
#MyositisLIFE: IBM Patient Video Support
#MyositisLIFE: IBM Patient Video Support
Register to join the MSU Inclusion body myositis real-time video support session, the last Friday of the month at 5 PM Eastern.
1 event,
#MyositisLIFE: Necrotizing Myopathy Patient Video Support
#MyositisLIFE: Necrotizing Myopathy Patient Video Support
Register to join the Immune-mediated necrotizing myopathy video support session, the last Saturday of the month at 7 PM Eastern.
1 event,
#MyositisLIFE: Weekly Sunday Clubhouse Support
#MyositisLIFE: Weekly Sunday Clubhouse Support
Join our Club, Myositis Support, for myositis patients and caregivers, for support, education, special guests, collaborations, and more. Join us every Sunday evening for intimate, from the Heart patient and care partner support in a safe space.
0 events,
1 event,
The Power of Our Voice: MSU Pain Study
The Power of Our Voice: MSU Pain Study
Join for a retrospective look at how a community call to action led to a seminal study on pain in Myositis and what it means for the community, with Drs Salman Bhai and Abhiram Bhashyam, co-authors of Pain profile and opioid medication use in myositis.
1 event,
#MyositisLIFE: Wednesday Evening Myositis Patient Video Support
#MyositisLIFE: Wednesday Evening Myositis Patient Video Support
All myositis patients, register to join us on the first Wednesday of each month at 7 PM ET for live video support.
1 event,
Myositis Support Gets Moving on Clubhouse
Myositis Support Gets Moving on Clubhouse
ALL who are living with Myositis are welcome, no requirements. Create your individual plan, use support partners, and join us every Thursday for Myositis Support Gets Moving on Clubhouse to discuss our successes, struggles, and barriers. Let's Get Moving any way we can, together.
0 events,
0 events,
![Myositis Support Sunday Clubhouse Session Myositis Support Sunday Clubhouse Session](https://understandingmyositis.org/wp-content/uploads/2017/01/sunday-clubhouse.png)
![MSU Men Event Men with Myositis Support group on Clubhouse. Picture showing men of diverse backgrounds in a circle laughing and talking](https://understandingmyositis.org/wp-content/uploads/2017/01/MSU-Men-Event-FB-1.png)
![geMyositis Support Gets Moving Myositis Support Gets Moving](https://understandingmyositis.org/wp-content/uploads/2021/10/getmoving-ch-room-feat-new.png)
![Myositis Support Sunday Clubhouse Session Myositis Support Sunday Clubhouse Session](https://understandingmyositis.org/wp-content/uploads/2017/01/sunday-clubhouse.png)
![What brings you joy event with Lisa Sniderman and Jessica Taylor What brings you joy event with Lisa Sniderman and Jessica Taylor](https://understandingmyositis.org/wp-content/uploads/2022/04/joy-event-2022-new.png)
![geMyositis Support Gets Moving Myositis Support Gets Moving](https://understandingmyositis.org/wp-content/uploads/2021/10/getmoving-ch-room-feat-new.png)
![#MyositisLIFE: Women with Myositis Video support #MyositisLIFE: Women with Myositis Video support](https://understandingmyositis.org/wp-content/uploads/2021/07/womens-group-msu.jpeg)
![Myositis Support Sunday Clubhouse Session Myositis Support Sunday Clubhouse Session](https://understandingmyositis.org/wp-content/uploads/2017/01/sunday-clubhouse.png)
![Flex Study treatment of Dermatomyositis Flex Study treatment of Dermatomyositis](https://understandingmyositis.org/wp-content/uploads/2022/04/feat-new.jpg)
![DM, PM and ASyS Video support group DM, PM and ASyS Video support group](https://understandingmyositis.org/wp-content/uploads/2021/04/pm-dm-asys-group-MSU.jpg)
![geMyositis Support Gets Moving Myositis Support Gets Moving](https://understandingmyositis.org/wp-content/uploads/2021/10/getmoving-ch-room-feat-new.png)
![Immune Globulin Therapy: Your questions answered Immune Globulin Therapy: Your questions answered](https://understandingmyositis.org/wp-content/uploads/2022/04/ig-allquestions-session-feat-final.png)
![Myositis Support Sunday Clubhouse Session Myositis Support Sunday Clubhouse Session](https://understandingmyositis.org/wp-content/uploads/2017/01/sunday-clubhouse.png)
![geMyositis Support Gets Moving Myositis Support Gets Moving](https://understandingmyositis.org/wp-content/uploads/2021/10/getmoving-ch-room-feat-new.png)
![Simple steps to focus on your emotional wellbeing with Lori Wong Simple steps to focus on your emotional wellbeing with Lori Wong](https://understandingmyositis.org/wp-content/uploads/2022/04/emotionalhealthworkshop-wong-lori-feat.png)
![ibm-zoom-group](https://understandingmyositis.org/wp-content/uploads/2017/01/ibm-zoom-group.png)
![Myositis Support Sunday Clubhouse Session Myositis Support Sunday Clubhouse Session](https://understandingmyositis.org/wp-content/uploads/2017/01/sunday-clubhouse.png)
![The Power of Our Voice: MSU Pain Study The Power of Our Voice: MSU Pain Study](https://understandingmyositis.org/wp-content/uploads/2022/05/pain-event-feat.png)
![geMyositis Support Gets Moving Myositis Support Gets Moving](https://understandingmyositis.org/wp-content/uploads/2021/10/getmoving-ch-room-feat-new.png)