Watch Caring for Caregivers

Caring for Caregivers: A webinar from The Myositis Association (TMA) and Myositis Support and Understanding (MSU).

In celebration of National Family Caregivers Month, TMA and MSU collaborated to provide a conversation about the challenges of caring for someone with myositis and resources available to help.

Featured speakers include:

  • Jill Kagan from ARCH National Respite Network and Resource Center
  • Jenny West from FamilyMeans, a Minnesota-based caregiver support agency
  • Anne Stewart from Well Spouse Association and wife of an IBM patient

Resources from the webinar

Myositis Support and Understanding

The Myositis Association

ARCH National Respite Network and Resource Center

Eldercare Locator  (800) 677-1116

Well Spouse

Medicare (800) MEDICARE

Family Caregiver Alliance  (800) 445-8106

National Council on Aging BenefitsCheckUp

Nine Steps to Respite

The ABCs of Respite: A Consumer Guide for Family Caregivers

State Respite Coalitions

National Respite Locator Service

Eldercare Locator  1-800-677-1116

Veteran’s Caregiver Support Program 1-855-260-3274

Contact information

Jill Kagan, Program Director ARCH National Respite Network and Resource Center
http://www.archrespite.org – 703.256.2084 – jkagan@archrespite.org

Jenny West, Community Educator for Caregiving & Aging – www.familymeans.org – 651-439-4840

Caregiver Support

Join The Myositis Support Community for private, online, 24/7 support.


Get some additional caregiver and care partners resources.

See additional myositis videos



Myositis Support and Understanding Association (MSU) is a patient-centered, all-volunteer 501(c)(3) nonprofit organization Empowering the Myositis Community. Founded by Myositis patients, for Myositis patients, MSU provides education, support, advocacy, access to research and clinical trial matching, and need-based financial assistance.

View more information: Myositis Support


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