Maureen shares her #MyositisLIFE

Maureen, the Senior Group Administrator for MSU, and a patient living with Polymyositis, shares her #MyositisLIFE with MSU showing her artistic side and true strength when living with the rare muscle disease, Polymyositis.

“I was diagnosed with Polymyositis 10 years ago. It is a rare disease that people need to understand. You can visit UnderstandingMyositis.org to learn more.” – Maureen

See Maureen on our Myositis Network

 


 

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Myositis Support and Understanding Association (MSU) is a 501(c)(3) nonprofit organization with a mission to improve the day-to-day lives of Myositis patients. MSU is a patient-centered organization, founded by Myositis patients, for Myositis patients, and believes education, support, advocacy, and assistance are keys helping patients and caregivers. As a nonprofit, we rely on donations for funding and volunteers to help manage a fast growing organization.

View more information: Jerry Williams

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Campaign for Myositis Awareness Month, May 2017

Purchasing a shirt from this booster will help us, Myositis Support and Understanding, with our many patient support programs, education, financial assistance for patients and upcoming programs.

This year, 2017, Myositis Support and Understanding’s awareness month theme is “Sometimes Zebras have spots!” We want to raise awareness about how the experiences, symptoms, and complications of this rare disease are different, even among the patients with the same disease. Doctors are now trained, when you hear hoof beats, look for zebras (rarities), instead of horses (common ailments); when in the past, they only looked for the most common ailments.

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Hi, this may be interesting to you: Maureen's #MyositisLIFE! The link is included below: https://understandingmyositis.org/maureens-myositislife/ --- Myositis Support and Understanding is a 501(c)3 nonprofit organization.