Cover your skin

Cover your skin

Cover your skin

As the Western Hemisphere turns from winter to spring, we are reminded of the need to protect ourselves from the sun. (Actually, sun protection should be a part of our routines year round, but even more so as the sun intensifies). Many of us, who are on steroids, immune-suppressing or modulating drugs, are rendered highly sensitive to sun damage by those medications. Also, people with myositis, especially but not limited to people with skin involvement, have a higher risk of malignancies, so protecting our skin becomes a required aspect of our treatment plan. The Skin Cancer Foundation has also addressed sun protection options: Skin Cancer Foundation

Some ways you can protect yourself are:

Always wear hats

The skin of the face, ears and scalp is especially vulnerable to the harmful rays of the sun. There are so many on the market, and wide-brimmed hats are most effective. Some brands to check out are: Tilley and Coolibar

UPF Clothing and Accessories

Treated clothing is so important because we can get the negative effects of sun through a t-shirt. There are all sorts of options, including lightweight, but UPF treated, scarves, gloves, jackets, swimsuits, shirts, pants, neck gators, sleeves, hoods and umbrellas.

Clothing can be washed with products that add UPF to the existing fibers. RIT makes one: Sunguard Sun Protection

Or you can purchase clothing with the UPF built in. A couple of companies we know about are: Coolibar and UVSkinz

Chemical Sunscreens

Please make sure to use sunscreen on any skin that will be exposed. Even driving in your car can leave you vulnerable to sunlight. There are a wide variety of sunscreens, but generally, most dermatologists agree that it should be a UVA/UVB Broad Spectrum with an SPF of 30. Personal preference and experience may lead you to use higher levels. Emily has DM and always uses at least 30, and can tell a difference if she uses a lower SPF. Some brands that have been recommended by dermatologists to us are EltaMD and Neutrogena Helioplex

Car Window Tinting

Many people have the windows tinted in their cars to cut down on the exposure while driving or riding. This is moderately expensive but has great benefits for your health. Car Window Tinting can usually be done through your local car dealership.

No matter how you do it, please protect your beautiful skin!

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Myositis Support and Understanding Association (MSU) is a 501(c)(3) nonprofit organization with a mission to improve the day-to-day lives of Myositis patients. MSU is a patient-centered organization, founded by Myositis patients, for Myositis patients, and believes education, support, advocacy, and assistance are keys helping patients and caregivers. As a nonprofit, we rely on donations for funding and volunteers to help manage a fast growing organization.

View more information: Jerry Williams

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Get your Zebra Shirts & Hoodies Today!

Campaign for Myositis Awareness Month, May 2017

Purchasing a shirt from this booster will help us, Myositis Support and Understanding, with our many patient support programs, education, financial assistance for patients and upcoming programs.

This year, 2017, Myositis Support and Understanding’s awareness month theme is “Sometimes Zebras have spots!” We want to raise awareness about how the experiences, symptoms, and complications of this rare disease are different, even among the patients with the same disease. Doctors are now trained, when you hear hoof beats, look for zebras (rarities), instead of horses (common ailments); when in the past, they only looked for the most common ailments.


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Hi, this may be interesting to you: Cover your skin! The link is included below: --- Myositis Support and Understanding is a 501(c)3 nonprofit organization.