#MyositisLIFE: Wednesday Evening Myositis Patient Video Support
MSU Zoom Video Session Video session using ZoomAll myositis patients, register to join us on the first Wednesday of each month at 7 PM ET for live video support.
Understanding Dysphagia with Suzanne Belmonte, patient and SLP
MSU Zoom Video Session Video session using ZoomRegister to join us on Zoom for Understanding Dysphagia with Suzanne Belmonte, a myositis patient, and speech-language pathologist, on Thursday, May 6, 2021, starting at 7 PM Eastern Time.
Communicating with your doctor as a Myositis patient
MSU Zoom Video Session Video session using ZoomIn our first webinar, we will talk more about how the patient /doctor relationship is changing in myositis. What should you expect? How do you make your voice heard? Dr. Bhai welcomes your questions.
Living with Myositis, An Awareness Month Discussion hosted by This is RARE.
ClubhouseThis is RARE. is hosting Jerry Williams, founder and president of MSU on Clubhouse for "Living with Myositis, An Awareness Month Discussion." Join us on Clubhouse May 14th at 7 PM ET to listen in, and to be a part of the discussion.
#MyositisLIFE: Saturday Afternoon Myositis Patient Video Support
MSU Zoom Video Session Video session using ZoomAll myositis patients, register to join us on the third Saturday of each month at 3 PM ET for live video support.
Myositis and COVID
MSU Zoom Video Session Video session using ZoomMamatha Pasnoor, MD, is joining us to discuss Myositis and COVID including inflammation of muscles with COVID infection, vaccination with immunosuppressive therapies, and COVID infection in myositis patients.
#MyositisLIFE: DM, PM and ASyS Patient Video Support
MSU Zoom Video Session Video session using ZoomIf you are living with dermatomyositis, polymyositis, or antisynthetase syndrome, join the third Wednesday of each month for support on Zoom.
Hands-on PT for Myositis Patients
MSU Zoom Video Session Video session using ZoomDavid Overby, a Physical Therapist with his own practice, is joining us to talk about Hands-On Physical Therapy for myositis patients, such as myofascial release. This is an exciting and unique session and we hope you will join us.
Myositis Do-It-Yourself Accessibility Adaptations with Larry M.
MSU Zoom Video Session Video session using ZoomMyositis group member, Larry shows us how he “Inspector Gadgets” his way through myositis. If you are interested in how he “MacGyver's” adaptations for things such as easier-to-use pens for hand weakness with fishing bobbers you are in for a treat! Join us!
#MyositisLIFE: IBM Patient Video Support
MSU Zoom Video Session Video session using ZoomRegister to join the MSU Inclusion body myositis real-time video support session, the last Friday of the month at 5 PM Eastern.
#MyositisLIFE: Necrotizing Myopathy Patient Video Support
MSU Zoom Video Session Video session using ZoomRegister to join the Immune-mediated necrotizing myopathy video support session, the last Saturday of the month at 7 PM Eastern.
#MyositisLIFE: Wednesday Evening Myositis Patient Video Support
MSU Zoom Video Session Video session using ZoomAll myositis patients, register to join us on the first Wednesday of each month at 7 PM ET for live video support.
RARE. Talk with MSU: The Rare Journey Begins
ClubhouseJoin us for the launch of RARE. Talk with MSU: The RARE. Journey Begins on Clubhouse, Monday, June 7th, 7 PM ET, hosted by This is RARE. Join us and be an active participant, or join to listen in. The discussions will be authentic and sometimes raw. We look forward to meeting you! Open to everyone living with a rare, chronic illness.
Myositis, Immunosuppressants and COVID Vaccine Response
MSU Zoom Video Session Video session using ZoomRegister & Submit Questions: Myositis, Immunosuppressants, and COVID Vaccine Response. A panel of John Hopkins physician researchers will be presenting a seminar on their brand-new results on COVID vaccine responses in myositis patients and immunosuppressant drugs, and are taking your questions.
#MyositisLIFE: DM, PM and ASyS Patient Video Support
MSU Zoom Video Session Video session using ZoomIf you are living with dermatomyositis, polymyositis, or antisynthetase syndrome, join the third Wednesday of each month for support on Zoom.
#MyositisLIFE: Saturday Afternoon Myositis Patient Video Support
MSU Zoom Video Session Video session using ZoomAll myositis patients, register to join us on the third Saturday of each month at 3 PM ET for live video support.
RARE. Talk with MSU: Self-Advocate or Hypochondriac
ClubhouseRARE. Talk with MSU: Self-Advocate or Hypochondriac, on Clubhouse, hosted by This is RARE. How does your doctor respond when you bring research, talk about your goals, talk about pain? Join us to talk about how we can work to improve our doctor-patient relationships.
#MyositisLIFE: IBM Patient Video Support
MSU Zoom Video Session Video session using ZoomRegister to join the MSU Inclusion body myositis real-time video support session, the last Friday of the month at 5 PM Eastern.
#MyositisLIFE: Necrotizing Myopathy Patient Video Support
MSU Zoom Video Session Video session using ZoomRegister to join the Immune-mediated necrotizing myopathy video support session, the last Saturday of the month at 7 PM Eastern.
#MyositisLIFE: Wednesday Evening Myositis Patient Video Support
MSU Zoom Video Session Video session using ZoomAll myositis patients, register to join us on the first Wednesday of each month at 7 PM ET for live video support.