Young adults living with rare diseases have many unmet needs and many life decisions that can be impacted by...
RDMD Partner Spotlight: How Myositis Support and Understanding Association adapts and stays nimble
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RDMD Partner Spotlight, Myositis Support and Understanding Association (MSU), patient-led, nonprofit organization for myositis patients and caregivers.
Join MSU in celebrating Rare Disease Day, Feb. 28th, and Rare Disease Week on Capitol Hill. We are also...
We all face a tough battle living with rare, autoimmune diseases like myositis. Remember to Be Kind as we...
It has been a busy and productive year for MSU. We are sorry so many are still suffering from...
Learn more about Rose's experience on Capitol Hill during Rare Disease Week 2017. Find helpful links to Advocacy organizations...
You are rare! Yes, you, living with Polymyositis, Dermatomyositis, Inclusion Body Myositis, and Juvenile Myositis. Our caregivers, you, too,...
Simply stated, an “orphan disease,” sometimes called a “rare disease,” describes one of more of 7,000 diseases affecting relatively...
It was an exciting day in the State of Delaware Tuesday, September 2nd. I had the honor to meet...
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