Young adults living with rare diseases have many unmet needs and many life decisions that can be impacted by...
Partner Spotlight: How Myositis Support and Understanding Association adapts and stays nimble
Charlene Fernandez of RDMD put MSU in the spotlight for Myositis Awareness Month, May 2020. Read the article to learn about MSU and two of the board members who also manage daily operations, and who are also living with myositis themselves.
Read the full article at https://www.rdmd.com/blog/partner-spotlight-myositis-supportand-understanding-association
We all face a tough battle living with rare, autoimmune diseases like myositis. Remember to Be Kind as we never know what one is dealing with on a particular day.
This article really struck at the heart of what many of us living with myositis face. We suggest reading and sharing this article.
By Rebecca Zook
“The rare disease-diagnosis road is not for the fainthearted. Anyone who has traveled it or lives with any kind of chronic illness is far stronger than you can imagine. We call ourselves zebra-warriors. In reality, we aren’t braver than anyone else; we are fighting because we have no choice. We are fighting an endless, unwinnable battle because the alternative is unthinkable. We have no cure and no end point. We walk side by side with our diagnoses and have to make peace with them.”
Read the full article at http://www.igliving.com/BlogEngine/post/be-kind.aspx
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