MSU is on the road for the first time this year to attend Rare Disease Week on Capitol Hill February 24th- February 28th hosted by Rare Disease Legislative Advocates (RDLA). This is part of our commitment to you to reach out and join other advocacy groups to help influence our legislature and “empower the myositis community.”
Rare Disease Week on Capitol Hill brings rare disease community members from across the country together to be educated on federal legislative issues, meet other advocates, and share their unique stories with legislators.
Jerry Williams, President MSU, and Lynn Wilson, Vice President MSU, will be providing you with near-daily video updates of the week’s events via Instagram, Facebook, and Facebook Live!.
We would love to have you join us at the events and be part of this powerful experience. You can register to attend the RDLA events for free at https://rareadvocates.org/rdw/.
Register to attend Clinical Trials 101, Feb. 27th, 3 PM Eastern
Understanding how clinical trials work to find the right fit for you
Join us for an interactive, online video session on Wednesday, February 27, 2019, starting at 3 PM ET. This session all about clinical trials.
This session is in partnership with Antidote Technologies and will be led by Lindsey Wahlstrom-Edwards, the Director of Partnerships for Antidote. Learn more about our partnership with Antidote.
Register for Free and Attend Live
THRIVE FOR RARE
As an organization in the rare community, we recognize that by collaborating with others we can do more than acting alone. We have committed to THRIVE to empower others in the rare community. Join us at thriveforrare.org
Stay updated and learn more on our Rare page!
Visit MYO RARE
