MSU On the Road to Rare Disease Week on Capitol Hill

MSU is on the road for the first time this year to attend Rare Disease Week on Capitol Hill February 24th- February 28th hosted by Rare Disease Legislative Advocates (RDLA). This is part of our commitment to you to reach out and join other advocacy groups to help influence our legislature and “empower the myositis community.”

Rare Disease Week on Capitol Hill brings rare disease community members from across the country together to be educated on federal legislative issues, meet other advocates, and share their unique stories with legislators.

Jerry Williams, President MSU, and Lynn Wilson, Vice President MSU, will be providing you with near-daily video updates of the week’s events via Instagram, Facebook, and Facebook Live!.

We would love to have you join us at the events and be part of this powerful experience. You can register to attend the RDLA events for free at https://rareadvocates.org/rdw/.

Join MSU for an interactive, online video session Wednesday, Feb 27, 2019, starting at 3 PM ET. This session all about clinical trials. Registration required but free! Click to Tweet

Register to attend Clinical Trials 101, Feb. 27th, 3 PM Eastern

Understanding how clinical trials work to find the right fit for you

Clinical Trials 101: Understanding how clinical trials work to find the right fit for you
Join us for an interactive, online video session on Wednesday, February 27, 2019, starting at 3 PM ET.  This session all about clinical trials.

This session is in partnership with Antidote Technologies and will be led by Lindsey Wahlstrom-Edwards, the Director of Partnerships for Antidote. Learn more about our partnership with Antidote.

Register for Free and Attend Live

We have committed to THRIVE to empower others in the rare community.THRIVE FOR RARE

As an organization in the rare community, we recognize that by collaborating with others we can do more than acting alone. We have committed to THRIVE to empower others in the rare community. Join us at thriveforrare.org

Stay updated and learn more on our Rare page!

Visit MYO RARE
Tags:

Author:

Myositis Support and Understanding Association (MSU) is a patient-centered, all-volunteer 501(c)(3) nonprofit organization Empowering the Myositis Community. Founded by Myositis patients, for Myositis patients, MSU provides education, support, advocacy, access to research and clinical trial matching, and need-based financial assistance.

View more information: Myositis Support

0 Comments

Leave a reply

Your email address will not be published. Required fields are marked *

*

This site uses Akismet to reduce spam. Learn how your comment data is processed.

Log in with your credentials

or    

Forgot your details?

Create Account

Send this to a friend