It is so comforting to hear stories of others who were stuck… And overcame! The stories of others who are in the same boat now, of fighting to reduce [prednisone], are strength to me. This group and the people in it… Hero’s to me and my lifeline to deal with something no one gets … But us. Thank you all for making me feel “normal”!
Author: Jerry Williams
Jerry Williams, the Founder and President of MSU, was diagnosed with Polymyositis in 2003 at the age of 27. Since his diagnosis, Jerry has made it his mission to help others living with the rare disease, Myositis. To this effort, Jerry is involved in many different aspects such as education, writing, helping support and answer questions from patients and caregivers, social networking and website development, and much more. (NOTE: Some things are posted under Jerry Williams but he is not the true author. This is because he manages the website.)
View more information: Jerry Williams
- Join the Yale Inclusion Body Myositis Registry April 15, 2019
- An Update on the Clinical Studies Using Arimoclomol as a Potential Treatment for Sporadic Inclusion Body Myositis Video March 22, 2019
- The Performance of the EULAR/ACR IIM classification criteria in an expert-defined 10 year incident cohort March 19, 2019