Learn what trauma is and isn’t, one theory of how it develops, and how it impacts the nervous system,...
Myositis Videos
Educational and Informational Myositis Videos to help empower myositis patients and caregivers and to bring about better awareness and understanding for friends and the public in general.
Videos are added every month or two. Be sure you are a registered member to receive notifications.
Young adults living with rare diseases have many unmet needs and many life decisions that can be impacted by...
Meet two people with myositis who are living their lives with purpose and positivity. Holly Jones and Rhonda Rogers...
Third Annual “A Day of Remembrance” a video event to honor and remember those we have lost with myositis....
Educational and engaging discussion w/ Dr. Andrew Mammen around immune-mediated necrotizing myopathy (IMNM) and the phase 2 clinical trial...
Learn how not forgiving others negatively impacts us, not the person we don’t want to forgive. We’ll look at...
This introduction to pain management will cover what chronic pain is and isn’t, different types of pain and their...
Watch to learn about safety, from fall prevention to the response for myositis patients and caregivers. Includes demonstrations and...
Watch for information to help guide your local physical and occupational therapy teams such as what should be included...
Learn about plasma donation and invite your family and friends to donate to help prevent a shortage of immunoglobulin...
Paul shares five important elements at the Heart of Caregiving from his own personal experience and story as a...
Managing Myositis Patient Care During the COVID-19 Public Health Crisis
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Dr. Aggarwal answers patient-submitted questions about COVID-19 and myositis with topics including proper precautions to stay safe, information about...
Occupational therapists Megan McGowan and Lauren Burgess, and physical therapists Fin Mears and Ruben Pagkatipunan Jr., discuss and demonstrate...
Watch the webinar as we welcome Babette Reeves, MA, MSW, LCSW, Behavioral Medicine Specialist, and she shares tools for...
Watch to learn about different types of orthotics and braces that may be helpful for people with myositis. We...
Dr. Lisa Christopher-Stine and Dr. Christopher Mecoli with Johns Hopkins Myositis Center joined MSU for a live Q&A webinar...
Introduction to the PRESIDIO Clinical Trial of KZR-616 for the Treatment of Polymyositis and Dermatomyositis
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Dr. Mary Katherine (MK) Farmer, MD, Rheumatologist and Senior Medical Director at Kezar Life Sciences, joined us live online...
In celebration of National Family Caregivers Month, TMA and MSU collaborated for a conversation about the challenges of caring...
Watch "Surviving the Holidays with Myositis" a webinar on #MyositisLIFE. Learn tips to get through the holidays living with...
Introduction to Ra Pharma & the Potential of Zilucoplan for the Treatment of IMNM Webinar
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Ben Matys, Sr. Clinical Trial Manager, and Ramin Farzaneh-Far, Chief Medical Officer of Ra Pharma, joined MSU) on November...
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