Watch "Surviving the Holidays with Myositis" a webinar on #MyositisLIFE. Learn tips to get through the holidays living with...
Myositis Videos
Educational and Informational Myositis Videos to help empower myositis patients and caregivers and to bring about better awareness and understanding for friends and the public in general.
Videos are added every month or two. Be sure you are a registered member to receive notifications.
Introduction to Ra Pharma & the Potential of Zilucoplan for the Treatment of IMNM Webinar
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Ben Matys, Sr. Clinical Trial Manager, and Ramin Farzaneh-Far, Chief Medical Officer of Ra Pharma, joined MSU) on November...
Experience of pain and fatigue in adult idiopathic inflammatory myopathies (IIM)
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Watch the video, "Experience of pain and fatigue in adult idiopathic inflammatory myopathies (IIM)" with Helene Alexanderson, Ph.D. with...
In this video, Patrick Schmidt of FFF Enterprises and Michelle Vogel of CSI Pharmacy join MSU to explain the...
Skin findings seen with myositis autoantibodies and treatment of skin in dermatomyositis
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Dr. Victoria Werth joined us live online for a video education session titled, "Skin findings seen with myositis autoantibodies...
Plasma Services Group (PSG) joined us for a live video discussion about donating plasma for medical research. You could...
CSI Pharmacy joined us for a live video education session about IG therapy, both IVIG and SCIG. Health insurance...
A session that covered safety and effects of exercise in recent onset and established adult and juvenile IIM. Dr....
Second Annual “A Day of Remembrance” a video event to honor and remember those we have lost with myositis....
Watch the AllStripes, formerly RDMD, video session we did in 2020 to learn more about the Inclusion Body Myositis...
An Update on the Clinical Studies Using Arimoclomol as a Potential Treatment for sIBM
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Watch "An Update on the Clinical Studies Using Arimoclomol as a Potential Treatment for sIBM" with Dr. Mazen Dimachkie,...
Learn about how clinical trials work in this educational and interactive video session led by Lindsey Wahlstrom-Edwards, Head of...
"New Developments on the Role of Itch in Dermatomyositis", based on new research published in the British Journal of...
New Insights on sporadic Inclusion body myositis (sIBM) pathogenesis
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Dr. Conrad "Chris" Weihl joins MSU live for a session titled "New Insights on sporadic Inclusion body myositis (sIBM)...
Watch "Polymyositis: The evolution of this diagnosis in light of recent research" with Dr. Christopher-Stine, who also discusses immune-mediated...
The NT5C1A Antibody Test and its Role in the Diagnosis of Inclusion Body Myositis
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Learn more about the NT5CIA antibody and its association with inclusion body myositis from Dr. Kevin Dooley, a retired...
Dr. Victoria Werth, MD, presents, "Overview and new developments in Dermatomyositis." This was a live Myositis Support and Understanding...
Learn more about Rose's experience on Capitol Hill during Rare Disease Week 2017. Find helpful links to Advocacy organizations...
Myositis Awareness Month 2016: A success story: YOU and MSU together reached over 187,000 people during Myositis Awareness Month...
