Clinical trials are a key research tool for advancing medical knowledge and patient care. Join Kezar Life Sciences as...
Myositis Videos
Educational and Informational Myositis Videos to help empower myositis patients and caregivers and to bring about better awareness and understanding for friends and the public in general.
Videos are added every month or two. Be sure you are a registered member to receive notifications.
For patients, caregivers, family and friends, watch Part 5 of our popular Exercise In Place series with the OT/PT...
Megan McGowen and Lauren Burgess, Occupational Therapy, and Fin Mears, Physical Therapy, with the Johns Hopkins Myositis Center discuss...
After Diagnosis: The Burden of Care and the Evolving Doctor/Patient Relationship
Myositis Support, , Featured, VideoDr. Salman Bhai joins MSU to share best practices related to myositis care and empowers you to seek the...
Learn practical techniques on how to flip negativity and tame irrational thinking patterns, how to reframe our attitude about...
The Tiger at the Door: The Relationship between Trauma and Chronic Pain
Myositis Support, , Featured, VideoLearn what trauma is and isn’t, one theory of how it develops, and how it impacts the nervous system,...
Young adults living with rare diseases have many unmet needs and many life decisions that can be impacted by...
Meet two people with myositis who are living their lives with purpose and positivity. Holly Jones and Rhonda Rogers...
Third Annual “A Day of Remembrance” a video event to honor and remember those we have lost with myositis....
Educational and engaging discussion w/ Dr. Andrew Mammen around immune-mediated necrotizing myopathy (IMNM) and the phase 2 clinical trial...
The Power of Forgiveness: How it can help care partners
Myositis Support, , Caregiver, Featured, VideoLearn how not forgiving others negatively impacts us, not the person we don’t want to forgive. We’ll look at...
This introduction to pain management will cover what chronic pain is and isn’t, different types of pain and their...
Watch to learn about safety, from fall prevention to the response for myositis patients and caregivers. Includes demonstrations and...
Watch for information to help guide your local physical and occupational therapy teams such as what should be included...
Learn about plasma donation and invite your family and friends to donate to help prevent a shortage of immunoglobulin...
Paul Kidwell Presents Five Stories at the Heart of Caregiving
Myositis Support, , Caregiver, Featured, VideoPaul shares five important elements at the Heart of Caregiving from his own personal experience and story as a...
Managing Myositis Patient Care During the COVID-19 Public Health Crisis
Myositis Support, , Featured, Myositis, VideoDr. Aggarwal answers patient-submitted questions about COVID-19 and myositis with topics including proper precautions to stay safe, information about...
Occupational therapists Megan McGowan and Lauren Burgess, and physical therapists Fin Mears and Ruben Pagkatipunan Jr., discuss and demonstrate...
Watch the webinar as we welcome Babette Reeves, MA, MSW, LCSW, Behavioral Medicine Specialist, and she shares tools for...
Watch to learn about different types of orthotics and braces that may be helpful for people with myositis. We...