Coronavirus concerns with Myositis

UPDATE 3/11/2020 – The numbers, according to the WHO and the CDC, appear to be changing. It is transmitting much more quickly than originally reported. The CDC’s new guidance seems to ask us to use an abundance of caution and self-isolate if possible. We still encourage you not to panic, but we understand being scared. Please consult with your doctor for more detailed guidance beyond normal germ-avoidance precautions, and of course, let our doctors know immediately if we have any symptoms.

Coronavirus (COVID-19) and Myositis Resources

Download the list of resources in a PDF format


MSU has been receiving questions about the Coronavirus (COVID-19) and myositis. We understand that when there is a new threat to public health and welfare, patients with chronic illnesses who are immunosuppressed have a vested interest in how to protect themselves. We reached out to some experts for advice and were directed to the following information that we are including below.

The information is fluid, as the virus is new and changing. We caution that you should view this (and all health threats) as you view any cold and flu season and take necessary precautions. BUT, we do want to encourage you to try not to over-stress yourself as stress is a trigger for the myositis family of diseases.

From all accounts, medical experts are urging caution and vigilance but not hysteria. We also invite you to keep your eyes and ears open in case the information changes. If we get more information, we will update this post.

CDC Coronavirus Disease 2019 (COVID-19) 

The White House Coronavirus Task Force and the CDC have been combined into one website. See the link above for the updated information, precautions, and much more.


A Message from the ACR about Coronavirus Disease 2019 (COVID-19)

From American College of Rheumatology (ACR)


Coronavirus and Arthritis: What You Need to Know

From The Arthritis Foundation


Coronavirus Disease 2019 (COVID-19) Situation Summary

From the Centers for Disease Control and Prevention (CDC)


Coronavirus disease 2019 (COVID-19), WHO Situation Report-41

From the World Health Organization (WHO)

Here are additional resources from WHO:

Updated WHO recommendations for international traffic in relation to COVID-19 outbreak
Q&A on coronaviruses (COVID-19)

Practice good hygiene

Everything we read says to practice your normal safety habits. Wash your hands often, use sanitizer in public, don’t touch your face in public, keep three feet between you and others (especially if they are coughing), wipe down surfaces if you are touching them, stay home when you can, etc.

There are also some great suggestions among these resources included above on how to be careful in the world, such as pushing buttons with your elbow, using a napkin to open a door, and more…things many of us already do.

Some final thoughts

The numbers, according to the WHO and the CDC, appear to indicate that this is a low risk but high transmission virus. But it doesn’t hurt to be vigilant; please be safe and remember not to panic.

As we reviewed these resources we felt comforted as fellow myositis patients and caregivers that as long as we take our normal germ-avoidance precautions, and of course let our doctors know immediately if we have any symptoms, that we can keep ourselves safe. We hope that you are able to derive the same comfort.

If you have these three new symptoms don’t delay in calling your doctor:

  • fever
  • cough
  • difficulty breathing or shortness of breath

We wish you the best of health and we are looking forward to spring!

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Myositis Support and Understanding Association (MSU) is a patient-centered, all-volunteer 501(c)(3) nonprofit organization Empowering the Myositis Community. Founded by Myositis patients, for Myositis patients, MSU provides education, support, advocacy, access to research and clinical trial matching, and need-based financial assistance.

View more information: Myositis Support

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© 2020 Myositis Support and Understanding Association (MSU). All rights reserved. | View our Privacy Policy, Terms, and Non-Discrimination policy. MSU is a charitable organization with 501(c)(3) tax-exempt status. Federal ID #47-4570748.

The best way to prevent catching or spreading coronavirus is thorough hand washing, social distancing, and social isolation. Should you begin experiencing symptoms of coronavirus, which include fever, cough, and shortness of breath, please contact your doctor immediately. View COVID-19 resources and updates, and stay tuned to your state, local, and federal health agencies, along with the CDC.

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