Get Involved with MSU and Myositis

Join MSU

Are you ready to get involved?

Join as a Board Member, Volunteer, or become a Group Admin!

As we continue our rapid growth, we are looking for Volunteers and Board Members who are interested in donating their time to help MSU be the very best we can be. There is a lot involved in nonprofit work and the more people we have on our team the better!

Do you have 8-15 hours a month available? Do you have special talents or skills relating to non-profit work and/or administrative tasks? Fundraising and events experience? Grants and proposal writing experience? Other experience that you believe would help us? We want you on our team!

We ask our Volunteers and Board Members to read our Mission Statement to ensure you agree with our future goals:

Our mission: Myositis Support and Understanding (MSU) is dedicated to improving the lives of Myositis patients through public policy, self-advocacy programs, need-based financial assistance for medical-related expenses, and to provide support and education to patients, caregivers, healthcare providers, the general public, and legislators about Myositis.

MSU will foster direct involvement with other Myositis organizations to help promote treatment innovation and research with our collective eyes on a cure and provide financial support to organizations that share similar visions.

In short, we want you! The secret to a well-run organization is the interest and participation of its constituents. MSU is no different! In fact, we are built on the idea that Myositis patients and family members/friends can help others affected by Myositis in effective and comprehensive ways. MSU is looking to add a number of admins to our groups to redistribute the “work/play” load, and help keep us running like a “well-oiled machine” – do you have a few hours (8-15 per week) to donate to help continue to make this a reality? If so, apply below.

Please note that we are looking for Board Members who have some non-profit and/or marketing experience. If you, or a friend or family member of yours, are interested in joining us, please share this with them.

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Myositis Support and Understanding Association (MSU) is a 501(c)(3) nonprofit organization with a mission to improve the day-to-day lives of Myositis patients. MSU is a patient-centered organization, founded by Myositis patients, for Myositis patients, and believes education, support, advocacy, and assistance are keys helping patients and caregivers. As a nonprofit, we rely on donations for funding and volunteers to help manage a fast growing organization.

View more information: Jerry Williams

© Myositis Support and Understanding Association, Inc. 2010-2017. All Rights Reserved. MSU is a 501(c)(3) nonprofit organization.

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Get your Zebra Shirts & Hoodies Today!

Campaign for Myositis Awareness Month, May 2017

Purchasing a shirt from this booster will help us, Myositis Support and Understanding, with our many patient support programs, education, financial assistance for patients and upcoming programs.

This year, 2017, Myositis Support and Understanding’s awareness month theme is “Sometimes Zebras have spots!” We want to raise awareness about how the experiences, symptoms, and complications of this rare disease are different, even among the patients with the same disease. Doctors are now trained, when you hear hoof beats, look for zebras (rarities), instead of horses (common ailments); when in the past, they only looked for the most common ailments.


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Hi, this may be interesting to you: Get Involved with MSU and Myositis! The link is included below: --- Myositis Support and Understanding is a 501(c)3 nonprofit organization.