I am a terribly private person, who is not very good at expressing myself, so social media is not something I normally embrace. This page has been a lifeline during the darkest times in my life. When the doctors don’t listen, don’t know, or don’t care, this page has been an incredible source of information. When friends and family can’t possibly understand, this group of people has been an inspiring source of support. At the very least it is a blessing not to feel so alone.
Author: Jerry Williams
Jerry Williams, the Founder and President of MSU, was diagnosed with Polymyositis in 2003 at the age of 27. Since his diagnosis, Jerry has made it his mission to help others living with the rare disease, Myositis. To this effort, Jerry is involved in many different aspects such as education, writing, helping support and answer questions from patients and caregivers, social networking and website development, and much more. (NOTE: Some things are posted under Jerry Williams but he is not the true author. This is because he manages the website.)
View more information: Jerry Williams
- Join the Yale Inclusion Body Myositis Registry April 15, 2019
- An Update on the Clinical Studies Using Arimoclomol as a Potential Treatment for Sporadic Inclusion Body Myositis Video March 22, 2019
- The Performance of the EULAR/ACR IIM classification criteria in an expert-defined 10 year incident cohort March 19, 2019