I am a terribly private person, who is not very good at expressing myself, so social media is not something I normally embrace. This page has been a lifeline during the darkest times in my life. When the doctors don’t listen, don’t know, or don’t care, this page has been an incredible source of information. When friends and family can’t possibly understand, this group of people has been an inspiring source of support. At the very least it is a blessing not to feel so alone.
This group has been a lifeline to me in the midst of so much uncertainty. I spent months muddling...
I may not have energy to post everyday but I love reading other’s posts and being a part of...
This group has given me so many new friends who are going through the same symptoms that I have....
This group has helped me thru some dark days.. The people care not only about themselves but everyone else....
This group is like a Normal Rockwell painting, a wonderful family where all are welcome and loved.
I love this group because no one can understand what we are going through except us. When we write...
I have learned so much from this group and feel I can ask anything even though we have not...
Myositis is such a strange and devastating disease. It affects people of different ages, areas of the body and...
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