MSU is a 501(c)(3) non-profit organization founded on July 30, 2015, for patients living with, and for loved ones...
Articles related to Myositis, Myositis Support and Understanding, and other relevant topics to inflammatory myopathies and autoimmune disease research, updates, knowledge, and education.
MSU is an organization which is operated by volunteers who understand Myositis on a very personal level. As patients with Myositis, we, too, experience the frustration of living with this disease which is rare and treatments which are harsh.
We understand that our medical team is extremely important to us, but that they have no way to truly understand what it is really like to live with our rare and complicated disease. So we lean on each other and learn from each other through our support groups, our website, and our nonprofit organization.
We continue to harness enthusiasm and determination focusing on educating each other, our friends and families, and the medical profession. Utilizing the energy we create working with each other to be a valuable force to the understanding and advocacy of these diseases and to provide assistance and support to people with Myositis.
The future of Myositis is bright, as is our future as an organization. We will post updates as we work towards our goals. We appreciate your support!
May is Myositis Awareness Month. Myositis Support and Understanding commemorates the month with patient-centered events. Our theme, "With Myositis,...
Investigators are seeking people with dermatomyositis to participate in a phase 2 clinical trial of the experimental drug IMO-8400....
We hope that your involvement with Myositis Support and Understanding (MSU) has allowed you to feel more included and...
It has been over 13 years since Jerry Williams, president of MSU, was diagnosed with Polymyositis, sometimes simply referred...
I think we often neglect to hear what our children and younger family members think about us living with...
Myositis Support and Understanding is hosting a fundraiser and requesting volunteers for #GivingTuesday, a global giving movement that has...
As we continue our rapid growth, we are looking for volunteers and Board Members who are interested in donating...
Myositis Awareness Month 2016: A success story: YOU and MSU together reached over 187,000 people during Myositis Awareness Month...
You are rare! Yes, you, living with Polymyositis, Dermatomyositis, Inclusion Body Myositis, and Juvenile Myositis. Our caregivers, you, too,...
Myositis Support and Understanding Joins Rare Disease Day® and the Global Movement to Raise Important Awareness for Rare Diseases...
Day-by-Day is the Myositis Way! Myositis Support and Understanding Association’s theme for Myositis Awareness Day 2015, and our ongoing...
It was an exciting day in the State of Delaware Tuesday, September 2nd. I had the honor to meet...
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