myositis awareness
Live with the Landman’s: Honoring the life of Stella Clapp
MSU Live YouTube MSU YouTube PageTo kick-off Spirit Week, join us LIVE on YouTube for an intimate discussion honoring the life of Stella Clapp with Stella's daughter, Jennifer Schubert.
3rd Annual Myositis Empower Walk
MSU Live YouTube MSU YouTube PageJoin us for the 3rd Annual Myositis Empower Walk either in person at Discovery Park in Henderson, NV, or via live stream, on Saturday, October 2, 2021. Don't miss the activities leading up to, and on the day of the walk!
Watch Party – 3rd Annual Myositis Empower Walk
MSU Zoom Video Session Video session using ZoomWhether you missed it or want to watch it again, because it was that good, join your Myositis family for a Zoom Watch Party of the 3rd Annual Myositis Empower Walk. This is so much more than watching people walk. Invite your family/friends to join too!
Immune Globulin Therapy: All your questions answered
MSU Zoom Video Session Video session using ZoomJoin MSU for a webinar with CSI Pharmacy, Immune Globulin Therapy: All your questions answered. This is your opportunity to ask the experts, including patient experts, the questions you have about the therapy such as side effects, brand differences, IV vs SubQ, site of care, insurance, out-of-pocket costs, copay assistance programs and more.
The Power of Our Voice: FDA Listening Session for Adult Dermatomyositis
ZOOM Webinar 9125 N Old State Rd, Lincoln, DE, United StatesThe power of our voice can impact the direction of research and clinical trials. Join us for a virtual Fireside Chat on the lessons learned from our FDA Listening Session for Adult Dermatomyositis.
Simple steps to focus on your emotional wellbeing with Lori Wong
MSU Zoom Video Session Video session using ZoomJoin us for a free interactive workshop with Lori Wong, a person living with inclusion body myositis and retired Stanford-certified Compassion Cultivation Training (CCT) teacher to explore evidence-based steps to support your mental well-being, which are just as important as the steps you take to care for your physical body.
The Power of Our Voice: MSU Pain Study
MSU Zoom Video Session Video session using ZoomJoin for a retrospective look at how a community call to action led to a seminal study on pain in Myositis and what it means for the community, with Drs Salman Bhai and Abhiram Bhashyam, co-authors of Pain profile and opioid medication use in myositis.
Myositis Empower Walk
MSU on FacebookJoin us for the 4th Annual Myositis Empower Walk in memory of Robert Landman. Join us in person at Discovery Park or via live stream on 10/8/2022.
Watch Party – 4th Annual Myositis Empower Walk
MSU Zoom Video Session Video session using ZoomNo registration required and this is open to the public. Invite your friends and family members to join as we watch the live stream of the 4th annual walk. Watch parties are a lot of fun. Join us!
Aches and Pains in Myositis by Dr. Salman Bhai
MSU Zoom Video Session Video session using ZoomDr. Salman Bhai, MSU Medical Advisor, will join us for a webinar on Sat., May 6th, to help us understand how patients, doctors, & PT's need to work together to individualize therapy treatment, and he will answer your questions.
What Brings You Joy?
ZOOM Webinar 9125 N Old State Rd, Lincoln, DE, United StatesJoin MSU on Zoom as we embark on an exploration of what joy means to you with the author of The Grieving Project, Lisa Sniderman, and Director of Ops for MSU, Jessica Taylor
The Disability Room
MSU Zoom Video Session Video session using ZoomWe will explore the life changing question of, “Am I disabled?” There can be many mixed emotions and thoughts around our disability status. We discuss the history of the American Disability Act in the U.S. and share our thoughts and ideas of what this means to our personal myositis journey.